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		LISTSERV Archives
		PARKINSN Home
		PARKINSN January 1999, Week 2

Subject:

Introduction

From:

Shari Ward <[log in to unmask]>

Reply-To:

Shari Ward <[log in to unmask]>

Date:

Thu, 7 Jan 1999 08:31:29 -0800

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Hello All...
My name is Shari Ward and I have just re-joined the list after being off =
it for about 6 or 8 months.
Symptoms ( a slight tremor in the left hand) showed up while I was in =
Physical Therapy for a very painful Frozen Shoulder in 1986.  I was also =
having other problems, including skin eruptions on my face and torso, =
leading my GP to believe I had Lupus and after a time had me see a =
Dermatologist.  The Dermatologist biopsied several lesions at various =
sites and returned a diagnosis of Jessner's Lymphocytic Infiltration of =
the Skin.  (Anyone on the list ever hear of it before??)
Anyway...to make a long story a little shorter, I was eventually sent to =
a neurologist, who did the regular testing, plus an MRI along with a =
bunch of blood work but would not give a definitive diagnosis of =
Parkinson's Disease...but instead indicated that I may have Wilson's =
Disease due to the toxic level of copper in the blood tests.  He =
eventually sent me to another Neuro at the Movement Disorders =
Clinic...who took all of 5 minutes to say "Parkinson's Disease".=20
 When I asked why it had taken so long for someone to actually give me a =
diagnosis (6 years by this time)...he simply said that if I was a woman =
in my 70's, almost any doctor would have said I had PD.
I was 45 when the tremor first showed up....51 when diagnosed with =
PD....and will be 58 in June of this year.  So, what do I say when asked =
how long I've had PD....6 or 12 years?  I was quite ill during the first =
6 years which was confusing to the doctors.  During these past 6 years, =
I have been on just about every Parkinson's med there is and could not =
tolerate them with the exception of Sinemet CR 100\25, which worked for =
about 2 1/2 years and then I couldn't tolerate it.=20
 I should mention that at the beginning of my illness I became Allergic =
to many things that I had not been sensitive to before.  And went into =
severe Anaphylactic Shock after my first dose of Artane (Thank goodness =
I was in the doctor's office at the time).
I'm now  on Sinemet CR 100/25( 3xdaily) and Mirapex (1.5 mg 3xdaily)  =
also Elavil ( 25mg 1 at bedtime).
I never did post any information about myself the first time I joined =
the list but it sure looks like I made up for it this time.  Sorry about =
the lengthy post...but I don't know what to put in and what to cut out.=20
Thanks for being there - all of you.
Shari
sjward @home.com
ICQ #9242499



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<DIV>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2>Hello All...<BR>My name is Shari =
Ward and I have=20
just re-joined the list after being off it for about 6 or 8 =
months.<BR>Symptoms=20
( a slight tremor in the left hand) showed up while I was in Physical =
Therapy=20
for a very painful Frozen Shoulder in 1986.&nbsp; I was also having =
other=20
problems, including skin eruptions on my face and torso, leading my GP =
to=20
believe I had Lupus and after a time had me see a Dermatologist.&nbsp; =
The=20
Dermatologist biopsied several lesions at various sites and returned a =
diagnosis=20
of Jessner's Lymphocytic Infiltration of the Skin.&nbsp; (Anyone on the =
list=20
ever hear of it before??)<BR>Anyway...to make a long story a little =
shorter, I=20
was eventually sent to a neurologist, who did the regular testing, plus =
an MRI=20
along with a bunch of blood work but would not give a definitive =
diagnosis of=20
Parkinson's Disease...but instead indicated that I may have Wilson's =
Disease due=20
to the toxic level of copper in the blood tests.&nbsp; He eventually =
sent me to=20
another Neuro at the Movement Disorders Clinic...who took all of 5 =
minutes to=20
say &quot;Parkinson's Disease&quot;. <BR>&nbsp;When I asked why it had =
taken so=20
long for someone to actually give me a diagnosis (6 years by this =
time)...he=20
simply said that if I was a woman in my 70's, almost any doctor would =
have said=20
I had PD.<BR>I was 45 when the tremor first showed up....51 when =
diagnosed with=20
PD....and will be 58 in June of this year.&nbsp; So, what do I say when =
asked=20
how long I've had PD....6 or 12 years?&nbsp; I was quite ill during the =
first 6=20
years which was confusing to the doctors.&nbsp; During these past 6 =
years, I=20
have been on just about every Parkinson's med there is and could not =
tolerate=20
them with the exception of Sinemet CR 100\25, which worked for about 2 =
1/2 years=20
and then I couldn't tolerate it. <BR>&nbsp;I should mention that at the=20
beginning of my illness I became Allergic to many things that I had not =
been=20
sensitive to before.&nbsp; And went into severe Anaphylactic Shock after =
my=20
first dose of Artane (Thank goodness I was in the doctor's office at the =

time).<BR>I'm now&nbsp; on Sinemet CR 100/25( 3xdaily) and Mirapex (1.5 =
mg=20
3xdaily)&nbsp; also Elavil ( 25mg 1 at bedtime).<BR>I never did post any =

information about myself the first time I joined the list but it sure =
looks like=20
I made up for it this time.&nbsp; Sorry about the lengthy post...but I =
don't=20
know what to put in and what to cut out. <BR>Thanks for being there - =
all of=20
you.<BR>Shari<BR>sjward @home.com<BR>ICQ #9242499<BR></FONT></DIV>
<DIV>&nbsp;</DIV></BODY></HTML>

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