THIS MAKES 2 OF US  !!
-----Original Message-----
From: David Cox <[log in to unmask]>
To: Bruce Anderson <[log in to unmask]>
Date: Saturday, January 23, 1999 1:34 AM
Subject: Re: Fw: Fw: Another Young PWP---some thoughts


>I will Lobby for 1 billion!!!!    Lets get it going!!!!   as of right now I
am
>only 30 and looking for something to do.  Yes I do have pd.
>
>
>Dave
>
>Bruce Anderson wrote:
>
>> -----Original Message-----
>> From: Jay Henkelman <[log in to unmask]>
>> .......>  As a group, we always have been.........and in
>> >essence still are........a lumbering-bumbling giant at best!  And until
>> >very recently...
>>     OH REALLY?  UNTIL VERY RECENTLY? WHAT THE HELL HAS CHANGED?
VIRTUALLY
>> EVERY OTHER DISEASE CONTINUES TO RECEIVE MORE, AS MUCH AS IN EXCESS OF
4000%
>> MORE, VIA THIS BULLY, AS YOU DESCRIBE IT. IT IS ONE THING TO "MENTION"
>> PARKINSONS DISEASE ALONG WITH A COUPLE OF OTHER RELATIVELY UNDERFUNDED
>> DISEASES.  IT IS QUITE ANOTHER TO ACTUALLY MAKE SOME CHOICES AS TO THE
>> FAIRNESS OF THE WHOLE INEQUITABLE MESS.
>>     I'm with you, Jay. We need to tighten the screws by lobbying our
>> congresspeople to open the purse strings and spend some serious money on
US.
>> President Clinton unilaterally, with no support from our allies, ,just
>> wasted* $1.5 billion worth of our missiles attaching Iraq.  We should be
>> demanding......what?  I propose we demand a nice round $1 billion!!!!
You
>> want notice, recognition?  This will get us noticed by the real press.
We
>> have to get in Society's face & tell them it is not fair to leave us
behind
>> like this.  $1 billion?  We tell them it is still little more than half
what
>> you are spending on curing another wholly voluntary disease - every year!
>> Pointing this out will NOT hurt AIDS, not one bit! (Save your threats,
boys,
>> please.)  But it will help us.
>>     Who's going to do this - lobby Congress for $1 billion?  I would say
>> forget about the professional PD groups. They have no sense of urgency.
>> Who's going to start this if not this
>>  burned up, doped up group of 1600? I can no longer
>> speak and I can walk no more than 5 feet.  I've been writing letters.
>> "We" need to get angry & do more.  Visiting daytime talk shows for more
>> happy
>> talk was fine.  But more of that is not going to do it.
>>     We have major, major budget surpluses coming up - and we crow over
the
>> fact that our disease was mentioned in a speech.  Pretty pathetic.
>>     Or maybe PD isn't so bad.  Heck we don't die from it. do we.
>>
>> *"Wasted:" I understand that our attack has not hurt Saddam's control or
his
>> popularity much.
>>
>> >an easy target for the neighborhood bully (NIH) to grab our share
>> >of the "candy" and run!  The time has come to throw the "raw meat" of
truth
>> >out and go for the "big picture"!  It all comes down to the color of
green.
>> >The equation for attracting research funding is simple.  The amount of
>> >funding made available will be directly proportionate to the degree of
>> >awareness/urgency we create.  Our "happy face" will bring us our cure in
>> >maybe 10-12 years regardless of what we do.  Where we can make a huge
>> >difference is by making sure that we ride the current "wave".  Tighten
the
>> >screws any and all ways possible.  Our efforts could translate into a
>> >savings of 5 to 7 years!!!  That would be phenomenal!!!
>>
>> B. Bruce Anderson (53, 5)
>> Schooley's Mtn., NJ
>> [log in to unmask]
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