Hi,

My name
nancy Mullein
[log in to unmask] wrote:

Dale, you failed to mention a few other commitments  that must be listed on this
List.

Dale u have take the time to unselfishly  worked for a cure for PD.  An example of
this is our perseverance working for the passage of thaw Dual bill Thank you
Thank you for taking the time to call or drop a note when I am extremely ill.,
taking the time to inform me of the activities . Very tired now ,  this is an
minuet sample of ur dedication to helping others that have PD /PD+, speaking for
those who are less able to , focusing on projects  that help PWP's a a whole as
oppose to being self serving .

Ivan take note.

Thank you,
nancy          aka Angel_3


>
> Ivan you pissed me off this morning which is no good for my PD. For years
> I have listened to the on going soap opera of you life and the never-ending
> complaints about the NPF. If you were a man about it and were sincere in your
> belief that your position was correct you would have long ago submitted the
> claim to the small claims court for resolution. The cost to submit to small
> claims court is nominal and I would put the fee up for you if you would get
> off this topic. I am not taking sides in the dispute but I do feel that you
> are blinded by the mot in your eye.
>
> Now you are asking us to support your boycott against the NPF. The NPF for
> many years has been the largest source of private funds for Parkinson
> research. Director Emeritus Nathan Slewett has lead the organization with
> tremendous foresight and dedication to finding the cure. Both he and Dr.
> Lieberman serve in a voluntary capacity. When President Nixon and Bush halted
> fetal cell research the NPF started to Fund research abroad to keep the
> research spirit working. The NPF has amassed the largest brain bank available
> to all researchers. They recently purchased the largest monkey farm to have an
> adequate supply of primates available to research needs.
> They have a net work of over 950 support groups and provide materials to the
> public and support groups without charge.
>
> They have stepped up to the plate when development's opened up opportunities
> such as: Giving a grant of money in excess of $ 100,000 to Robert Johnson
> Memorial Hospital after the gene discovery to purchase a new medical device
> that reduced the research from 10 years to 6 months. When Dr. Martha Bream
> discovered a new way to take a cloned cell through the blood brain barrier on
> the back of a virus the NPF was there with more than 750,000 when the NIH
> turned down her grant request.
>
> There are some in the PD community that feel that the young researcher is
> systematically excluded from grants because off an old boy mentality. The
> young researcher coming into our field needs research support without being
> corrupted by the thoughts of the long time researched who works to be sure his
> peer review group will continue his grant for next year. With that thought in
> mind the Alliance has teamed up this year to raise funds to support and bring
> in new young researchers.
>
> What are you offering to replace this tremendous effort put forth by the
> voluntary and salaried workers at the NPF? All I hear from you is more carping
> and more carping. Your comments are selfish and inner directed for your
> satisfaction and offer little that could be off benefit to all who suffer but
> still work for a cure for this disease.
>
> Yes I am an Alliance Member and I'm proud to say so. I saw you at the last Pan
> Forum and we are about at the same state of the disease but I am still doing
> what I can to help by brethren with this affliction. I take personal affront
> to a call for a boycott for your selfish reasons and submit my credentials
> below to support my position on behalf of my fellow workers and friends who in
> the most part work anomously:
>
>  I am a member and co founders of NY PanHandlers a political lobby group.
>
>  I attended three forums in Washington sponsored by PAN and have called on
> over 120 Senators or Congressman.
>
> I am the support group leader in Syracuse. I visited any number of support
> groups upon request to promote Joan Samuelson and her advocacy arm.
>
> I worked on or donated funds to support a number of PD projects such as PAN
> video for lobby purpose.
>
> Participated in the last two Unity walks and my sponsored team raised $ 2,000
> or more each year.
>
> I attended PAN fundraisers in NYC and NPF fundraiser in Pittsburgh and others.
>
> I was Invited and accepted offer to join the Alliance to continue to advocate
> for Federal Funds. I will travel February to NPF where I will gather with 17
> other voluntary workers to attend a 2-day seminar on fund raising techniques.
>
> I am organizing the first PD symposium in Syracuse of which I am then
> originator and principle organizer. I a sponsoring a fundraiser in conjunction
> with Symposium.
>
> And my legacy to the PD Community when I can no longer donate by skills and
> time to the Effort will be THE NATIONAL DATABASE of PD support groups.  The
> Univ. of Mass has all ready used this tool, which is still in the development
> stage. to contact and locate siblings to participate in Gene study funded by
> Anthe NIH and several other events one of them is a bike tour sponsored by Robin
>
> Elliott of the PDF
>
> And so you see that I am a tireless worker for the PD Community looking to add
> something of value rather than tear down those who are trying to help
> My Parkinson and me friend.
>
> Ivan you add a lot to this list and you have ma sympathic friends here. But
> you're continued comments about your problem with the NPF diminish your
> stature and respect, which you enjoy on the list.
>
> Now I have said it Its off my chest. I feel better