Joan,sounds like your husband is having a tough time.  Wish I had some
answers for you.  How long and at what dosage did the hallucinations appear?
What dosage is he supposed to go up to? I have just started on Mirapex for
about five weeks now and haven't seen any benefits at1 mg. I am supposed to
go to 1.5 mg next week which is the end dosage to be maintained. It sounds
like you have had a troublesome search for the right doctor.  Best wishes to
you and your husband.

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-----Original Message-----
From: Joan Etheridge <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, February 18, 1999 3:45 PM
Subject: Shaking & Wear off time


>Thanks for the imput so far on the above.  I'll give more detail as
requested.
>My husband has had pd for 12 or 13 years.  Goetz at Pres St. Lukes
confirmed
>it, but said it would probably only be left sided...Husband was working at
the
>time so did not continue there as traffic stressed him out coming home that
>late in the day after work.  He found a neurologist that knew nothing about
pd
>& let him do as he thought he should.  When he retired at age 64, we found
>another Doctor who was seeing along with his team (400 pd patients) --4
>doctors.  This doctor was into new meds & programs that he was documenting.
>Well & good, but husband did not want to go along with this.  We say
another
>Dr. new in the business which did not work out...the doctor we are with now
is
>a neurologist...nice, but after working with my husband says none of his
>patients exhibit his symptoms & so cannot help.  He suggest
>a doctor specializing in pd. Husband is on mirapex, 5 tablets of .025
daily,
>2 at 7, 2 at 12:00 noon & 1 at 6 p.m.  Sinimet 25/100's 4 daily, one at 8,
10,
>12 & 2.    We've tried the time ones, do not work.  We've increased mirapex
&
>hallucinations occur.
>Has tried the new drug, taszmar, did not work--more correa & shaking.
I've
>video's his tremors & shown the doctors & they have not seen anything like
it.
>I'm trying to locate another doctor--maybe it will be a consultation at
Pres
>St. Lukes with Dr. Goetz or another somewhere.  Some of the problem lies
with
>working with my husband.  He is afraid everyone is trying to get him to
have
>surgery...also has many other fears...am not sure drug induced, but they
come
>& go.  Lately his 10:00 time has been a series of severe shaking, but today
>again he was fine until this evening. The shake downs leave him exhausted,
>totally wet from perspiring, his eyes close so he can't see & his has to
pry
>his lids open.  Last anywhere from ahalf hour to mostly an hour sometimes
>longer.
>Maybe this will be more informative for those of you who asked.  Thanks.
Joan