^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
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--------- Forwarded message ----------
From: [log in to unmask]
To: [log in to unmask]
Date: Wed, 10 Mar 1999 21:15:46 -0500
Subject: Re: Plans for National PD Awareness Day
Message-ID: <[log in to unmask]>

WOW!!


Ivan

On Wed, 10 Mar 1999 18:31:18 -0600 Stan or Joan Snyder <[log in to unmask]>
writes:
>Hello all: I 'd just like to take the time to ask for your prayers
>and
>support for what we here in Chillicothe, Ill. have planned for
>National
>PD awareness day. There is an artist from Chillicothe; her name is
>Jane
>Scott. Her father was a teacher at the local high school for many
>years
>until Parkinson's came into his life & changed things completely for
>his
>family. Jane & a friend, Marc Esser began to chronicle the battle
>that
>Claude Scott waged with PD. Marc's work was objective-he photographed
>Claude, while Jane's work was completely subjective. Together they
>produced an exhibit that is powerful, heartbreaking and breathtaking
>in
>its sheer tour de force. The exhibit, titled: "The Letting Go: A
>Parkinson's Story" was shown at Bradley University for a time
>1995-1996.
>After some recognition by a national PD organization, it started to
>tour
>the country, only to be pulled before it's tour was completed. It has
>since been gathering dust in a building at Caterpiller. Well, I met
>this
>remarkable woman recently & we became fast friends. Her father had
>died
>in the meantime and while it has been painful for her to take another
>look at this work, she has agreed that it must be used to help
>promote
>awareness and hope in finding a cure. To this end, we have been
>working.
>Here is a brief look at what we have been doing-We have scheduled the
>work to be shown at Shore Acres Park in their beautiful, Tara-like
>building overlooking the Illinois River, on the 10th & 11th of
>April.We
>have been in touch with Susan Reuse (National Coordinator APDA Young
>PD
>Information & Referal Center) who has already helped us out with a
>large
>banner and a promise of materials to be used as handouts and other
>information that we may need. Yesterday, joined by my friends, Sandy
>Norris & Carter Stewart (fellow PWP's), we were interviewed by a TV
>reporter from our local station, who has also ssaid that she would be
>our spokesperson. She gathered enough info to do a series of stories
>on:
>1) the internet connection-the cyber support that we have found in
>our
>pd chatroom which eventually brought the three of us together. We had
>not met face-to-face before. 2) We talked about my upcoming collegen
>injections for which i will undergo harvesting of skin cells on March
>19th. After 8-10 wks. to grow the collegen, it will be injected into
>my
>vocal chords to help me speak again. As far as we know, this will be
>the
>first time that this procedure will have been done in the Midwest. 3)
>The actual plans for our PD Awareness Day. As plans unfold, there
>will
>be more interviews.
>     My friend & co-hort, Tom Kelly (another PWP) is in charge of
>contacting the
>national organizations and seeing what kind of interest we can
>generate
>there. The mayor of Chillicothe (whose uncle had PD) & the
>newly-elected
>alderman (whose father & father-in-law both have PD) have both
>pledged
>their support. The local newspaper interviewed us after the TV
>station
>did. We have people working on t-shirts, refreshments, and finally
>corporate sponsorship-to put this powerful work back on the road
>where
>it can educate the public & raise, I hope awareness & money & help us
>to
>find a cure!  Sincerely,
>
>--
>Joan E. Snyder (47-8-10) <[log in to unmask]>
>"In the depths of winter I finally learned there
>was in me an invincible summer" Albert Camus
>http://www.newcountry.nu/pd/members/snyder/page1.htm

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
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