^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses        28   deg. F   :-)
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--------- Forwarded message ----------
From: [log in to unmask]
To: [log in to unmask]
Date: Wed, 10 Mar 1999 21:21:08 -0500
Subject: Re: Plans for National PD Awareness Day
Message-ID: <[log in to unmask]>

I am writing a Joint House Senate Resolution with State Rep. Bill
Norbert, Portland.

April 11 (Dr. James Parrkinson was born on this day) is World Parkinson's
 Day.

Good luck!

Ivan S.  :-)

On Wed, 10 Mar 1999 17:14:48 +0000 serenityplus
<[log in to unmask]> writes:
>Hi,
>
>Some of us in the SF Bay area are jumping on the bandwagon to do
>something about awareness for April statewide, like Maine and New
>Jersey. But when is National PD Awareness Day? And are there any PD
>organizations involved?  Please respond ASAP, as we need to move fast
>our here to get something together. Thanks!    Ann
>
>Stan or Joan Snyder wrote:
>>
>> Hello all: I 'd just like to take the time to ask for your prayers
>and
>> support for what we here in Chillicothe, Ill. have planned for
>National
>> PD awareness day. There is an artist from Chillicothe; her name is
>Jane
>> Scott. Her father was a teacher at the local high school for many
>years
>> until Parkinson's came into his life & changed things completely for
>his
>> family. Jane & a friend, Marc Esser began to chronicle the battle
>that
>> Claude Scott waged with PD. Marc's work was objective-he
>photographed
>> Claude, while Jane's work was completely subjective. Together they
>> produced an exhibit that is powerful, heartbreaking and breathtaking
>in
>> its sheer tour de force. The exhibit, titled: "The Letting Go: A
>> Parkinson's Story" was shown at Bradley University for a time
>1995-1996.
>> After some recognition by a national PD organization, it started to
>tour
>> the country, only to be pulled before it's tour was completed. It
>has
>> since been gathering dust in a building at Caterpiller. Well, I met
>this
>> remarkable woman recently & we became fast friends. Her father had
>died
>> in the meantime and while it has been painful for her to take
>another
>> look at this work, she has agreed that it must be used to help
>promote
>> awareness and hope in finding a cure. To this end, we have been
>working.
>> Here is a brief look at what we have been doing-We have scheduled
>the
>> work to be shown at Shore Acres Park in their beautiful, Tara-like
>> building overlooking the Illinois River, on the 10th & 11th of
>April.We
>> have been in touch with Susan Reuse (National Coordinator APDA Young
>PD
>> Information & Referal Center) who has already helped us out with a
>large
>> banner and a promise of materials to be used as handouts and other
>> information that we may need. Yesterday, joined by my friends,
>Sandy
>> Norris & Carter Stewart (fellow PWP's), we were interviewed by a TV
>> reporter from our local station, who has also ssaid that she would
>be
>> our spokesperson. She gathered enough info to do a series of stories
>on:
>> 1) the internet connection-the cyber support that we have found in
>our
>> pd chatroom which eventually brought the three of us together. We
>had
>> not met face-to-face before. 2) We talked about my upcoming
>collegen
>> injections for which i will undergo harvesting of skin cells on
>March
>> 19th. After 8-10 wks. to grow the collegen, it will be injected into
>my
>> vocal chords to help me speak again. As far as we know, this will be
>the
>> first time that this procedure will have been done in the Midwest.
>3)
>> The actual plans for our PD Awareness Day. As plans unfold, there
>will
>> be more interviews.
>>      My friend & co-hort, Tom Kelly (another PWP) is in charge of
>> contacting the
>> national organizations and seeing what kind of interest we can
>generate
>> there. The mayor of Chillicothe (whose uncle had PD) & the
>newly-elected
>> alderman (whose father & father-in-law both have PD) have both
>pledged
>> their support. The local newspaper interviewed us after the TV
>station
>> did. We have people working on t-shirts, refreshments, and finally
>> corporate sponsorship-to put this powerful work back on the road
>where
>> it can educate the public & raise, I hope awareness & money & help
>us to
>> find a cure!  Sincerely,
>>
>> --
>> Joan E. Snyder (47-8-10) <[log in to unmask]>
>> "In the depths of winter I finally learned there
>> was in me an invincible summer" Albert Camus
>> http://www.newcountry.nu/pd/members/snyder/page1.htm

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
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