Barb,

Well, I suppose i might...BRING ON THE ICE CREAM!

On Mon, 19 Apr 1999 17:54:08 -0700 Barb_MSN <[log in to unmask]>
writes:
>Sooooo, Ivan, does this mean ya LIKE the idea? <grin> (Just a wild
>guess on my part... )
>
>Barb Mallut
>[log in to unmask]
>
>-----Original Message-----
>From: Ivan M Suzman <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Monday, April 19, 1999 4:23 PM
>Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent?
>
>
>>Lemme see.......my favorite flavor is COCONUT.
>>Darn, I'll ask BEN or JERRY to fly me to the Islands,
>>so that Lisa Crumrine and I can PIG out together
>>on ice cream--and it will be too WARM for me to
>>be FROZEN UP.
>>
>>Then again, if I eat too much ice cream, I
>>might get an attack of hyper-glaceeamia.
>>
>>Or is it hypo-glaceemia-that sugar craving-
>>satisfied only by un coup de glace on the
>>occipital bone.
>>
>>Is it COOL to wear gloves while eating
>>COCONUT ice cream, to protect me from
>>hypoglaceeamia in ze tropics?
>>
>>Which color, excuse me, couleur of
>>bathing suit do I wear?  Pink with white
>>edges-a la James Parkinson tulip?
>>
>>Can we have HOURGLASS competition
>>to see who can stuff the most ice cream
>>in?  Or would a flamer like me need a
>>flaming torch?
>>
>>Flambeau anybody?  Hey WAIT A MINIM.
>>how about BAKED Alaska-eating orgies?
>>
>>The flames might get rid of my hypothermia!
>>But I am still perplexed--will Cher Bono be
>>thre. or do I get to make the fashion statement??
>>
>>Ivan gone stark raving drooling mad at the
>>thought of an ICE-CREAM MARATHON
>>for MAJOR MEDIA ACTION. I.M.M.M.A. for short.
>>
>>Buttons with slogans that say Eat Ice
>>Cream and Cure PD; banners in parades;
>>
>>SUGAR cones with every 6 refills of
>>Sinemet  Ice Cream PIES made of lemon
>>sherbet - or sorbait - for Sinemet; Coconut
>>Ice for Eldepryl; and the SLOGAN of a
>>lifetime--
>>
>>"LET's LICK THIS DAMN DISEASE!
>>
>>Ivan the mad Maniac
>>
>>wear?
>>
>>On Mon, 19 Apr 1999 10:57:30 -0700 Barb_MSN
><[log in to unmask]>
>>writes:
>>>Dear Hilary 'n Ivan....
>>>
>>>I've got THEE perfect world-wide-attention-grabber
>>>that'll make all of us sweet-treat and ice-cream guzzling
>>>Parkies make it to the front page of all the major
>>>newspapers and also will tickle the fancy of all the
>>>big-name TV anchors.  Parkinson's will become a
>>>household word if we do THIS!!   Ready?  Here's
>>>what we gotta do:
>>>
>>>To make Parkinson's and those of us who live
>>>with this %#@^& disease VISIBLE and FAMOUS
>>>(which theoretically would also bring in the much
>>>needed research bucks so a cure and/or treatment
>>>may be found) , errrrrr.... I digress... is to hold a
>>> world-wide ICE CREAM EAT-A-THON!
>>>
>>>I can see the headlines now:  "Millions of Parkinson's
>>>sufferers and their families and friends vow to
>>>non-stop eat ice cream till a CURE to the disease
>>>is found." (Choice of flavors left up to the eater) <smile>
>>>
>>>Heck.... we can get Ben and Jerry to be our spokespersons!
>>>
>>>Barb Mallut (who absolutely LOVES ice cream!)
>>>[log in to unmask]
>>>
>>>-----Original Message-----
>>>From: Hilary Blue <[log in to unmask]>
>>>To: [log in to unmask]
><[log in to unmask]>
>>>Date: Monday, April 19, 1999 1:07 AM
>>>Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent?
>>>
>>>
>>>>I recently met somebody who works for one of the advocacy
>groups
>>>in Washington
>>>>DC, where her job is (believe it or not_) to keep things OUT OF
>>>the news
>>>>media.  Well, as publicity is her field, I asked her what we
>were
>>>doing wrong.
>>>>First of all, she confessed she had never heard of Archbishop
>>>Tutu and had no
>>>>idea of who he was or what he was famous for - which may be
>>>indicative of why
>>>>we elicited no response (!) but more importantly, she said we
>>>were not doing
>>>>anything wrong , we were on the right track, we just HADNT DONE
>>>ENOUGH!  That
>>>>we should have frequent press releases., for every little event
>>>and occurrence
>>>>relating to PD, so that it is constantly in the eye of the news
>>>media, And
>>>>that we should get some celebrity - she mentioned Michael J
>Fox
>>>( him she had
>>>>heard of) to speak out on our behalf. And she assumed we had a
>>>full time press
>>>>officer - does any of the PD organisations have a press officer
>>>on its exec?
>>>>Hilary Blue
>>>>
>>>>***************************************************************
>**
>>>*****
>>>>
>>>>Ivan M Suzman wrote:
>>>>>
>>>>> ^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
>>>>>  Ivan Suzman        49/39/36       [log in to unmask]   :-)
>>>>>  Portland, Maine    land of lighthouses         39  deg. F
>>>:-)
>>>>>
>>>****************************************************************
>**
>>>**
>>>>>   I am DISGUSTED that the Tutu-PD story has been ignored
>>>>> by the major media!  But I am NOT surprised.
>>>>>
>>>>>   As an anthropologist, I wish to record the observation here
>>>>> that, as far as I am aware, we listmembers contacted more
>than
>>>1000
>>>>> media worldwide.  Killings in Yugoslavia get banner
>headlines,
>>>>> but as far as I am aware, NO phone calls, ZERO, have come to
>>>>> either Archbishop Tutu's offices, or to my house, to cover
>>>>> the story of his powerful and wonderful response to our
>>>>> pleas for his support. I believe Barb Patterson had the
>>>>> only radio interview, but it brushed aside the Tutu story.
>>>>>
>>>>>   We simply are NOT on the agenda of the media,
>>>>> unless we are convenient "filler" material.  I wonder
>>>>> if we could change that with a press conference,
>>>>>  BLASTING the major media. Or we send a delegation
>>>>> in wheelchairs to block the doors of the NIH Director.
>>>>>
>>>>> It was actions like this that made AIDS an "agenda
>>>>> item."  Is PROTEST, rather than persuasiveness, the
>>>>> only way to get the attention we deserve?
>>>>>
>>>>> I personally believe that we can, and we
>>>>> should, add the element of a protest, an outcry,
>>>>> at this time.
>>>>>
>>>>>      Locally, in Maine, a tiny black-owned and edited
>>>>> bimonthly, The Bridge, right here in Portland, IS about
>>>>> to print the Tutu-PD story.  But ALL of the TV and
>>>>> radio and newspapers have ignored it.
>>>>>
>>>>>       The African-American editor of the Bridge hopes to
>>>publish
>>>>>  by the end of this month. We served as two of Portland's
>>>>> three co-chairpersons on the Martin Luther King
>>>>> Holiday Committee in 1986.
>>>>>
>>>>>       There are  so many obstacles for PWP's to gain
>>>>> access to the media.  I would have thought a Nobel
>>>>> Laureate and WORLD figure like Archbishop Tutu
>>>>> would be interviewed, even if little Ivan doesn't seem
>>>>> to matter to them.
>>>>>
>>>>>       And where have Mr. Fox and his publicity gotten
>>>>> us?  When Robin Elliot relays that NOBODY from
>>>>> our community is on the NIH council, what IS the
>>>>> message we should derive?
>>>>>
>>>>>      For me, now starting to deteriorate, in my 14th
>>>>> year of Young Onset PD, or YOPD + something
>>>>> unknown, I can only say that it is my near collapse
>>>>> last Friday and my continuing vulnerability that push
>>>>> me to say that,
>>>>>
>>>>>    although we have come a long, long, way,
>>>>> there are  still HUGE obstacles in our paths, and
>>>>> only the brave and spiritually strong will
>>>>> help us along to reach our "mountaintop,"
>>>>> that is, the CURE for this wretched disease!
>>>>>
>>>>> Ivan Suzman
>>>>> Portland, Maine
>>>>
>>
>>^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
>> Ivan Suzman        49/39/36       [log in to unmask]   :-)
>> Portland, Maine    land of lighthouses           deg. F   :-)
>>*****************************************************************
>***
>>

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
********************************************************************