dear Barb,
     I am not a big ice cream eater, but I do like fat boys they are about a
two inch thick ice cream sandwich. Janice
----- Original Message -----
From: Barb_MSN <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, April 19, 1999 5:54 PM
Subject: Ice Cream Eat-A-Thon for PD


> Sooooo, Ivan, does this mean ya LIKE the idea? <grin> (Just a wild
> guess on my part... )
>
> Barb Mallut
> [log in to unmask]
>
> -----Original Message-----
> From: Ivan M Suzman <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Monday, April 19, 1999 4:23 PM
> Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent?
>
>
> >Lemme see.......my favorite flavor is COCONUT.
> >Darn, I'll ask BEN or JERRY to fly me to the Islands,
> >so that Lisa Crumrine and I can PIG out together
> >on ice cream--and it will be too WARM for me to
> >be FROZEN UP.
> >
> >Then again, if I eat too much ice cream, I
> >might get an attack of hyper-glaceeamia.
> >
> >Or is it hypo-glaceemia-that sugar craving-
> >satisfied only by un coup de glace on the
> >occipital bone.
> >
> >Is it COOL to wear gloves while eating
> >COCONUT ice cream, to protect me from
> >hypoglaceeamia in ze tropics?
> >
> >Which color, excuse me, couleur of
> >bathing suit do I wear?  Pink with white
> >edges-a la James Parkinson tulip?
> >
> >Can we have HOURGLASS competition
> >to see who can stuff the most ice cream
> >in?  Or would a flamer like me need a
> >flaming torch?
> >
> >Flambeau anybody?  Hey WAIT A MINIM.
> >how about BAKED Alaska-eating orgies?
> >
> >The flames might get rid of my hypothermia!
> >But I am still perplexed--will Cher Bono be
> >thre. or do I get to make the fashion statement??
> >
> >Ivan gone stark raving drooling mad at the
> >thought of an ICE-CREAM MARATHON
> >for MAJOR MEDIA ACTION. I.M.M.M.A. for short.
> >
> >Buttons with slogans that say Eat Ice
> >Cream and Cure PD; banners in parades;
> >
> >SUGAR cones with every 6 refills of
> >Sinemet  Ice Cream PIES made of lemon
> >sherbet - or sorbait - for Sinemet; Coconut
> >Ice for Eldepryl; and the SLOGAN of a
> >lifetime--
> >
> >"LET's LICK THIS DAMN DISEASE!
> >
> >Ivan the mad Maniac
> >
> >wear?
> >
> >On Mon, 19 Apr 1999 10:57:30 -0700 Barb_MSN
> <[log in to unmask]>
> >writes:
> >>Dear Hilary 'n Ivan....
> >>
> >>I've got THEE perfect world-wide-attention-grabber
> >>that'll make all of us sweet-treat and ice-cream guzzling
> >>Parkies make it to the front page of all the major
> >>newspapers and also will tickle the fancy of all the
> >>big-name TV anchors.  Parkinson's will become a
> >>household word if we do THIS!!   Ready?  Here's
> >>what we gotta do:
> >>
> >>To make Parkinson's and those of us who live
> >>with this %#@^& disease VISIBLE and FAMOUS
> >>(which theoretically would also bring in the much
> >>needed research bucks so a cure and/or treatment
> >>may be found) , errrrrr.... I digress... is to hold a
> >> world-wide ICE CREAM EAT-A-THON!
> >>
> >>I can see the headlines now:  "Millions of Parkinson's
> >>sufferers and their families and friends vow to
> >>non-stop eat ice cream till a CURE to the disease
> >>is found." (Choice of flavors left up to the eater) <smile>
> >>
> >>Heck.... we can get Ben and Jerry to be our spokespersons!
> >>
> >>Barb Mallut (who absolutely LOVES ice cream!)
> >>[log in to unmask]
> >>
> >>-----Original Message-----
> >>From: Hilary Blue <[log in to unmask]>
> >>To: [log in to unmask]
> <[log in to unmask]>
> >>Date: Monday, April 19, 1999 1:07 AM
> >>Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent?
> >>
> >>
> >>>I recently met somebody who works for one of the advocacy
> groups
> >>in Washington
> >>>DC, where her job is (believe it or not_) to keep things OUT OF
> >>the news
> >>>media.  Well, as publicity is her field, I asked her what we
> were
> >>doing wrong.
> >>>First of all, she confessed she had never heard of Archbishop
> >>Tutu and had no
> >>>idea of who he was or what he was famous for - which may be
> >>indicative of why
> >>>we elicited no response (!) but more importantly, she said we
> >>were not doing
> >>>anything wrong , we were on the right track, we just HADNT DONE
> >>ENOUGH!  That
> >>>we should have frequent press releases., for every little event
> >>and occurrence
> >>>relating to PD, so that it is constantly in the eye of the news
> >>media, And
> >>>that we should get some celebrity - she mentioned Michael J
> Fox
> >>( him she had
> >>>heard of) to speak out on our behalf. And she assumed we had a
> >>full time press
> >>>officer - does any of the PD organisations have a press officer
> >>on its exec?
> >>>Hilary Blue
> >>>
> >>>***************************************************************
> **
> >>*****
> >>>
> >>>Ivan M Suzman wrote:
> >>>>
> >>>> ^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
> >>>>  Ivan Suzman        49/39/36       [log in to unmask]   :-)
> >>>>  Portland, Maine    land of lighthouses         39  deg. F
> >>:-)
> >>>>
> >>****************************************************************
> **
> >>**
> >>>>   I am DISGUSTED that the Tutu-PD story has been ignored
> >>>> by the major media!  But I am NOT surprised.
> >>>>
> >>>>   As an anthropologist, I wish to record the observation here
> >>>> that, as far as I am aware, we listmembers contacted more
> than
> >>1000
> >>>> media worldwide.  Killings in Yugoslavia get banner
> headlines,
> >>>> but as far as I am aware, NO phone calls, ZERO, have come to
> >>>> either Archbishop Tutu's offices, or to my house, to cover
> >>>> the story of his powerful and wonderful response to our
> >>>> pleas for his support. I believe Barb Patterson had the
> >>>> only radio interview, but it brushed aside the Tutu story.
> >>>>
> >>>>   We simply are NOT on the agenda of the media,
> >>>> unless we are convenient "filler" material.  I wonder
> >>>> if we could change that with a press conference,
> >>>>  BLASTING the major media. Or we send a delegation
> >>>> in wheelchairs to block the doors of the NIH Director.
> >>>>
> >>>> It was actions like this that made AIDS an "agenda
> >>>> item."  Is PROTEST, rather than persuasiveness, the
> >>>> only way to get the attention we deserve?
> >>>>
> >>>> I personally believe that we can, and we
> >>>> should, add the element of a protest, an outcry,
> >>>> at this time.
> >>>>
> >>>>      Locally, in Maine, a tiny black-owned and edited
> >>>> bimonthly, The Bridge, right here in Portland, IS about
> >>>> to print the Tutu-PD story.  But ALL of the TV and
> >>>> radio and newspapers have ignored it.
> >>>>
> >>>>       The African-American editor of the Bridge hopes to
> >>publish
> >>>>  by the end of this month. We served as two of Portland's
> >>>> three co-chairpersons on the Martin Luther King
> >>>> Holiday Committee in 1986.
> >>>>
> >>>>       There are  so many obstacles for PWP's to gain
> >>>> access to the media.  I would have thought a Nobel
> >>>> Laureate and WORLD figure like Archbishop Tutu
> >>>> would be interviewed, even if little Ivan doesn't seem
> >>>> to matter to them.
> >>>>
> >>>>       And where have Mr. Fox and his publicity gotten
> >>>> us?  When Robin Elliot relays that NOBODY from
> >>>> our community is on the NIH council, what IS the
> >>>> message we should derive?
> >>>>
> >>>>      For me, now starting to deteriorate, in my 14th
> >>>> year of Young Onset PD, or YOPD + something
> >>>> unknown, I can only say that it is my near collapse
> >>>> last Friday and my continuing vulnerability that push
> >>>> me to say that,
> >>>>
> >>>>    although we have come a long, long, way,
> >>>> there are  still HUGE obstacles in our paths, and
> >>>> only the brave and spiritually strong will
> >>>> help us along to reach our "mountaintop,"
> >>>> that is, the CURE for this wretched disease!
> >>>>
> >>>> Ivan Suzman
> >>>> Portland, Maine
> >>>
> >
> >^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
> > Ivan Suzman        49/39/36       [log in to unmask]   :-)
> > Portland, Maine    land of lighthouses           deg. F   :-)
> >*****************************************************************
> ***
> >
>