Seymour....

Thanks so much for posting a copy of the Janet Reno article.  I
found this to be very interesting in many ways...

The author showed a Janet Reno I'd never seen before - one who
DOES discuss Parkinson's Disease, but refers to what she has a
"IT," (which I usually do, also, not wanting to grant "it" even so
much as a name).

That she even discusses "IT" at ALL is a surprise to me, and to
share her FEELINGS about having this disease is even more of a
surprise, considering what the press has quoted her as saying
about it in the past, I.e., "it's no big deal, etc.."

This message actually changes my view of Ms. Reno, because I
presumed from previous press-originated articles that she had no
desire to discuss "IT" at all, and it appears NOW that she WILL
discuss "IT."    BUT - she isn't going to let "IT" dominate her
conversation OR her life and is willing to say that.

I'd like to see this message in other newspapers, if possible, and
will send a copy of it to the L.A. Times, with a brief cover
letter suggesting that they show a COMPLETE picture of Ms. Reno
the next time one of their reporters comments that she has PD.

Better yet, I'd like to see Ms. Reno take a even a small public
stance letting the world know that with the drugs that are
available today, persons with "IT" can lead a longer and more
productive life in many cases.

It should also be noted that for every Janet Reno, there's someone
struggling to just make it thru the day with a modicum of comfort
and a tiny bit of dignity and quality of life.

Barb Mallut
[log in to unmask]
-----Original Message-----
From: MR SEYMOUR GROSS <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Monday, May 17, 1999 8:07 PM
Subject: Janet Reno


>-- [ From: Seymour Gross * EMC.Ver #2.5.3 ] --
>
>This article was on page C8 of the May 17 edition of the
Philadelphia
>Inquirer
>
>Even with Parkinson's, Reno carries on
>
>By Carol Rosenberg
>
>KNIGHT RIDDER NEWS SERVICE
>NEW YORK - Some people with Parkinson's disease stuff their hands
in
>their pockets. Others routinely sit on them or clamp them behind
their
>back. Not America's attorney general.
>
>Three years after her diagnosis, Janet Reno does nothing to hide
the
>tremors that wrack both arms. At a recent event at MTV's Times
Square
>headquarters, she shuddered so much during a talk on youth
violence that
>both the podium and microphone shook.
>
>"We are living in a culture of violence," the former Dade County,
Fla.,
>prosecutor said, asking adults to listen to young people - a
short
>speech that won warm applause and kind words.
>
>In trademark style, Janet Reno has gone from Stage 1 to Stage 2
>Parkinson's while in the limelight as America's top law enforcer.
By
>dealing with it matter-of-factly, by dismissing her tremors as a
>"phantom wing" - Reno has, perhaps unwittingly, emerged as
Parkinson's
>"poster child." Her experience may also say something about
America's
>changing attitude toward disabilities.
>
>Listen to Judy McGrath, MTV's hip black-clad president, who
joined with
>the Justice Department recently to promote a CD-ROM providing
young
>people with advice on how to channel their rage creatively - into
poetry
>, music, and public service: "I think of the power of her
personality
>and who she is when she gets going - and I kind of forget what
she's
>doing and how she looks," said McGrath, 46, whose corporation
reaches
>265.8 million homes worldwide.
>
>Not that it's easy to ignore.
>
>"I see it. I feel bad for a minute and I completely forget about
it,"
>she said. When Reno works a crowd, McGrath says, people look her
in the
>eye, not at her hands. "If anything, you respect her even more."
Why?
>"She acts like she's in charge of her own life. So you forget
about it.
>You don't go to feeling sad. She crackles with life."
>
>Parkinson's is a brain disorder that generally comes with age and
has no
>cure. It gradually robs people's ability to control their
movements. It
>is caused by the absence of a chemical called dopamine, which
lets most
>of us move our limbs smoothly. More than a million Americans have
it,
>among them the Rev. Billy Graham and actor Michael J. Fox.
>
>Tremors are a frequent first stage. Then can come what doctors
call a
>masklike face, meaning people with Parkinson's do not show
typical signs
>of emotion. If they live long enough, people can lose all motor
skills.
>
>So, is a public figure's disability necessarily a news story?
When is a
>disease a disability? If it is only cosmetic, should journalists
be
>asking questions - and writing articles - about something that is
>perhaps a private matter? A Justice Department spokesman recently
>welcomed a Miami Herald request for permission to interview
Reno's Miami
>neurologist about how her disease has progressed. Her tremors
became
>more noticeable lately, and seemed to surprise some people.
>
>Yet Reno's aides say she shows no signs of slowing down and seems
>untroubled by the disease that could someday leave her
permanently
>bedridden. In a brief interview Thursday, she gave a one-word
answer -
>"no" - when she was asked whether Parkinson's interfered with her
work.
>
>"She has no evidence on examination that she has any problem with
>judgment, thinking, abstract thinking, etc.," said her doctor,
Miami
>neurologist William J. Weiner.
>
>Weiner described Reno's condition as "mild Parkinson's."
Technically,
>she is classified as Stage 2 on a scale of 1 to 5, with 5 being
the most
>advanced, or bedbound or in a wheelchair. "She has Stage 2
because it's
>obvious on both sides of her body," he said.
>
>So much so that when she sat among reporters, rockers and youth
>counselors at the MTV studios, her feet flat on the ground, her
hands
>folded in her lap, she shook in her seat while she listened
attentively
>to a teen from Arizona recite rage poetry.
>
>"She doesn't seem to care. She says outright that she has
Parkinson's.
>She is to be admired for that. She has nothing to hide," Weiner
said.
>
>The doctor says her disability could disqualify her from certain
jobs -
>such as brain surgeon or pilot - but not from directing the
100,000
>lawyers and FBI agents, bureaucrats and border guards of the
Justice
>Department.
>
>Of course, he and other Parkinson's experts say, stress adds to
the
>symptom - accentuates the tremors - but it does not make it
progress any
>faster than a stress-free environment.
>
>So, her doctor said, if she doesn't mind the stress of the job
making
>the tremors more noticeable, why should others? Reno, for her
part,
>cannot connect stress and her tremors. "It's so hard to tell
because,
>some days, when I should be totally stressed out, it doesn't
shake much
>at all," she said. "It doesn't seem to have any rhyme or reason
to it."
>