Thanks Susan for a great project that means a lot.. And thanks to SImon
and the Coles.

Ivan

On Thu, 27 May 1999 18:12:18 EDT YoungPD I&R <[log in to unmask]> writes:
>Subj:   Introducing PDKIDS
>
>Hi Everyone,
>
>A while ago there was quite a bit of dicussion of this List about the
>need
>for an Internet List for kids that would allow them to share the same
>type of
>information & support we give each other on this List.  So I thought
>the
>following announcement would be of interest to everyone.
>
>If you know of kids who live with a family member who has PD, enourage
>them
>to send an email to subscribe to PDKIDS.  This is a list for all
>PDKIDS
>through teenage years.
>
>A special thank you to our friend Simon Coles and the Adreinne Coles
>Memorial
>Trust for partnering with us on this project.
>
>The American Parkinson Disease Association Young PD Information and
>Referral
>Center was created to help the entire family of the person with
>young-onset
>PD.  We think this is a much needed addition to our information &
>support
>services.
>
>Susan Reese, RN, LCSW
>National Coordinator
>American Parkinson Disease Association
>Young PD I&R Center
>1/800-223-9776
>___________________________
>INTRODUCING PDKIDS
>
>The American Parkinson Disease Association Young Parkinson's
>Information &
>Referral Center  (http://members.aol.com/apdaypd) in partnership with
>the
>Adrienne Coles Memorial Trust  (http://www.coles.org.uk/) is
>sponsoring
>PDKIDS, an email discussion list for kids who are living in a family
>with
>Parkinson's Disease.
>
>PDKIDS was established as a forum for children (through teenage
>years)
>affected by PD to have a place to share with each other.  Kids may
>discuss in
>confidence (to the extent that an Internet list will allow) anything
>they
>wish about living with a parent or grandparent who has  PD.
>
>A word about privacy: Subscriber names and personal email addresses
>will be
>automatically deleted from email headers posted to the list to ensure
>confidentiality.  Using the "reply" button to respond to a member's
>posted
>email will go directly to the PDKIDS list, not to an individual
>member.
>There will be a "light adult presence" on the list, serving to
>provide
>technical guidance and to ensure that the conversation remains
>constructive.
>This "presence" will be provided by the APDA Young Parkinson's
>Information &
>Referral Center and by Simon Coles, the administrator of the Adrienne
>Coles
>Memorial Trust and himself an adult PD kid. The list archive is
>private to
>list members.
>
>
>   To join PDKIDS, send an email to
>        [log in to unmask]
>
>   To discuss Parkinson's Disease in general, please join one of the
>   lists at http://www.coles.org.uk/community.htm
>
>   To reach the list owners, send an email to
>   [log in to unmask]

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
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