Miss Barb,
    That I will do, vanilla is my favorite so I will stock up on it. The
weight I lost on Requip will find its way back on me then. LOL I will have
to toss the two piece swim suits then.:)). I am to old for them anyway.
Janice
----- Original Message -----
From: Barb_MSN <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, June 22, 1999 9:10 PM
Subject: Re: Bionic Barb


> Janice...
>
> My heart really goes out to you having that miserable doc tell you
> your symptoms were "psychosomatic."  I get knots in my stomach
> whenever I hear of a medical "professional" sticking that label on
> someone.   In fact, prior to getting my PD diagnosis, I was told
> by a coupla doctors  the vague symptoms I had experienced for 7
> years were "in my head."
>
> Uhhhh.... well in a way, that was a correct diagnosis, considering
> where PD originates from, but DAMN, it hurts to be called a
> hypochondriac when you KNOW you've got something wrong going on
> inside you - something that's scary and ya can't hang a name on
> it.
>
> Listen, m'dear... if you're already taking vitamin E and calcium,
> might I suggest sitting down with a big bowl of ice cream and
> leisurely spooning it into your mouth, bite by bite
> by bite?  Mmmmmmm, YUMMY!  HEY.... it ain't no cure for what ails
> ya, but it's a WONDERFUL distraction. <LOL>  Your choice of
> flavors, of course.... <smiling>
>
> Barb Mallut
> [log in to unmask]
>
> -----Original Message-----
> From: Janice Morgan <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Tuesday, June 22, 1999 6:01 PM
> Subject: Re: Bionic Barb
>
>
> >Miss Barb,
> >     Thank you, I do take vitamin 1200 I U and I also take 2000
> mgs of
> >Calcium aday. Just when I have been very active and play very
> hard I get the
> >leg cramps at night.  I am also trying to get my meds right. I
> went to a new
> >Doc and she took me off Sinemet and Parlodel and put me on Requip
> that made
> >me very sick. When  I  went  back to see her she told me that I
> was
> >psychosomatic and to a psychologist that I did not have PD. Then
> I started
> >to leave and she said then again I just might have it to come and
> see her in
> >six months. She would not give me any meds. So I went to see a
> psychologist
> >and he said that I was not psychosomatic. So I am back on Sinemet
> two times
> >aday 25/100 until I see my Doc at Kaiser in July. I feel much
> better on it
> >that off. Who would want this dumb pd any way not me for sure. I
> do not
> >planed to go back and see her again. She was a movement disorder
> Doc.
> >Janice 51 almost 52/50/46
> >
> >----- Original Message -----
> >From: Barb_MSN <[log in to unmask]>
> >To: <[log in to unmask]>
> >Sent: Tuesday, June 22, 1999 12:28 PM
> >Subject: Re: Bionic Barb
> >
> >
> >> Thanks Janice!  And say, ya might wanna try taking approx.. 800
> >> to 1200 ICUs of vitamin E daily to rid yourself of those nasty
> leg
> >> cramps   If you go ahead and take the vitamin E, you should
> have
> >> pretty speedy positive results.
> >>
> >> I've also had positive results from taking calcium (in a coupla
> >> daily "TUMS" tablets), but prefer the vitamin E as my mouth
> tastes
> >> awful after the TUMS.
> >>
> >> So there ya are - getting not one, but two suggestions on how
> to
> >> rid yourself of them darn leg cramps!
> >>
> >> Barb Mallut (former member of the "Killer Leg Cramp Club")
> >> [log in to unmask]
> >>
> >> -----Original Message-----
> >> From: Janice Morgan <[log in to unmask]>
> >> To: [log in to unmask]
> <[log in to unmask]>
> >> Date: Tuesday, June 22, 1999 7:40 AM
> >> Subject: Re: Bionic Barb
> >>
> >>
> >> >Hi Barb,
> >> >      I woke up last night because I had bad leg cramps, I
> though
> >> I heard
> >> >some one yell  YEEEEAAAAAHHHHHH!!!! I am very glad to hear it
> was
> >> you and
> >> >that your voice is back. Love Janice
> >> >----- Original Message -----
> >> >From: Barb_MSN <[log in to unmask]>
> >> >To: <[log in to unmask]>
> >> >Sent: Tuesday, June 22, 1999 12:14 AM
> >> >Subject: Bionic Barb
> >> >
> >> >
> >> >> Dear List-family....
> >> >>
> >> >> YYYYYEEEEEHHHHAAAAAWWW!!! <---Barb, yelling LOUDLY in
> >> excitement>
> >> >>
> >> >> As of tonite, I have my REAL voice back!   Back, and LOUD,
> if
> >> >> that's how I wanna speak!   YEA!!!!!!!!!!!!
> >> >>
> >> >> UCLA's Dr. Gerald Burke injected collagen into both vocal
> cords
> >> >> this afternoon, and  now at 11:45 p.m., my "normal' speaking
> >> voice
> >> >> has returned!!!!!!   Well, "returned" for
> >> >> 3 to 6 months, anyway.... till the collagen's absorbed by my
> >> body.
> >> >>
> >> >> But HEY - guess what?  Next time my "normal" voice starts
> >> fading
> >> >> away to a breathy whisper I'll have not one  option, but
> TWO.
> >> >> Yup folks... TWO, as in 1-collagen injections lasting 3 to 6
> >> >> months, or,  2- a long-term ("long-term," as in as long as
> the
> >> PD
> >> >> stays slow moving as it's been for almost 25 years) tiny,
> >> >> man-made, hammer-shaped thingee implanted into my vocal
> cords
> >> via
> >> >> the passage thru the thyroid capsule (inserted right THRU
> the
> >> >> capsule AROUND and/or past the thyroid).
> >> >>
> >> >> The tiny "thingee (has a long medical name which I can't
> >> recall,
> >> >> but I'll get it from Dr, Burke tomorrow and List-post it)
> >> >> procedure accomplished in a 1/2 hour operation in the
> doctor's
> >> >> office and has been performed on folks with vocal cord
> problems
> >> >> for about 10 years or more, according to Dr, Burke and also
> by
> >> >> many other neck and throat specialists all over the world.
> >> >>
> >> >> Only recently has this type of surgery been done on Parkies,
> >> and
> >> >> WHICH Parkie gets it is decided by their own neck and throat
> >> >> specialist/surgeon, based upon their PD being rather slow
> >> moving
> >> >> (as in slowly degenerating rather than swiftly moving).  I'm
> >> not
> >> >> too sure what constitutes "slowly moving" to the DOCTOR, but
> to
> >> ME
> >> >> that means the vocal cords are stable enough to permit the
> >> "tiny
> >> >> thingee" to remain implanted for at LEAST a year or longer
> >> before
> >> >> needing to be replaced by a new one  cut to fit the changing
> >> vocal
> >> >> cords.
> >> >>
> >> >> Since I won't be a candidate for this procedure till the
> >> collagen
> >> >> which I got today is absorbed by my body (3 to 6 months),
> >> >> obviously I cannot share more about this surgery till I've
> had
> >> it.
> >> >> But since it's apparently so well known by neck and throat
> >> >> specialists, if you'd like to know more about it (like
> cost -
> >> >> Medicare covers it, by the way), I suggest ya call the
> nearest
> >> >> teaching hospital/university and ask for their neck and
> throat
> >> >> clinic...  They 'll no doubt be able to fill ya in on this
> >> >> relatively minor operation.
> >> >>
> >> >> OH.... and ya might hear some MD's saying this surgery ISN'T
> >> for
> >> >> PWP's, but Dr. Burke SWEARS it CAN be successful when
> performed
> >> on
> >> >> a Parkie, provided the doctor makes sure BEFORE the
> operation
> >> that
> >> >> the patient's PD is indeed slowly to degenerate.
> >> >>
> >> >> (NON-proofed for errors or typos)
> >> >>
> >> >> Barb Mallut (written in haste, 'cause I'm awfully tired now)
> >> >> [log in to unmask]
> >> >>
> >> >
> >>
> >
>