oh ivan
   the sun is shining here in our mountains and it has to shining on you
today.you will never know how often i think of you and pray that you will
get whatever you need to go on spreading cheer and hope all goes  well
with your future.
   best wishes
      connie
        ps
i wish i could send you the 4th of july fireworks greeting card but you cant
get them so no can do


-----Original Message-----
From: Ivan M Suzman <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Tuesday, June 29, 1999 9:41 PM
Subject: Re: WPXT-TV interview and broadcast TODAY for PWP:SUCCESS!


>TV INTERVIEW NOTES for all on the PIEN List:
>
> PWP and CG's swaying to LOUD GOSPEL MUSIC .......
>
>Thanks to someone very special up there, I made it through the interview.
>  The gospel
>tape from the Turtle Creek Chorale and the Hamilton Park Baptist Church ,
>of Dallas, Texas is CRANKED to VERY,VERY loud, and , here are my thoughts
>for you all:
>
>The interview was great- I went into the yard, showed my grapes and then,
>up the
>double-railed stairs, into the house, showed the wheelchair-accessible
>bathroom, showed the PIEN, with Edie Luther's message ON the screen,
>showed pictures of Maryhelen
>and Manuel Davila, Camilla, the Lima Ohio support group of Don and Vivian
>McKinley, a letter from the Muhammad Ali office to me.
>
>Talked for 90 minutes!!  Jennifer asked many, many questions. She covered
>the Udall funding fight, the lack of movement disorder clinics in Maine,
>NH, Vermont, and nearby
>Canada.
>
>We talked about access to specialists, the issues ofquality of life for
>families facing PD, the reasons why I believe I will need surgery, the
>lack of money for caregivers that prevents me from having a stable home
>life, especially, the low wage and partial funding for enough coverage to
>feel completely safe to risk surgery.
>
>I went OFF on-camera!!  Tremors, had to take pills on camera, even had to
>drink OJ
>with a bent straw-hands became too weak to hold  a cup with a large
>handle.
>
>I feel tired but exhilarated.  A once-in-alifetime dream.  Let's hope
>others get such
>opportunities to go PUBLIC. I am smiling!!
>
>Got to rest before dinner.  Hoping anyone out there who can videotape
>WPXT-TV,Channel 51 on UHF, or 12 Cable, will do so.
>
>Jennifer's cameraman, John were sporting big smiles at the end- she ate
>one of
>my  fresh-picked GARDEN strawberries that I picked this morning, on
>camera , and received a THANK YOU card from me, thanking her for
>providing the honor to me to VISIBLY represent PWP's, to close the
>interview.
>
>However she mixes and edits the interview tape- it is a winner.
>
>Maybe I'll be able to get copies!
>
>
>Ivan
>WHEW!!!  :-)  :-)
>
>On Tue, 29 Jun 1999 15:16:11 -0400 Camilla Flintermann
><[log in to unmask]> writes:
>>Ivan I just got back from bringing Peter home from hospital--I can
>>only
>>stress what I expect you will say--that PD is different for each PWP,
>>that
>>$$$$for research are needed, that not all PWPs are senior citizens,
>>and
>>that it affects the whole person, head-to-toe, far beyond any visible
>>effects such as tremor or masked face.  I would also make the point
>>that it
>>affects the whole family and comminuty as a result---good luck--sorry
>>no
>>more time.
>>
>>Camilla Flintermann, CG for Peter 81/70/55
>>Oxford, Ohio
>>http://www.newcountry.nu/pd/members/camilla/one.htm
>><[log in to unmask]>
>>
>>                        "Ask me about the CARE list for
>>                        Caregivers of Parkinsonians ! "
>
>^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
> Ivan Suzman        49/39/36       [log in to unmask]   :-)
> Portland, Maine    land of lighthouses         74  thunderstorms deg. F
> :-)
>********************************************************************
>