Hello Paul...

        I would suggest you check out Kathryn Holden's site at
http://www.nutritionucanlivewith.com
for informatiom on how to order her book "Eat Well, Stay Well with PD"
She is an expert in the field and a highly  respected member of this list
(but she is currently on vacation.)  For an abbreviated, free version of her
work you call call NPF at 1-800-327-4545

        You can also search the archives for previous posts at
http://domino.parkinsons.org.uk/Parkinsons/PARKINSNLog.nsf/Main/$searchForm?Se
archView

Regards,

Barbara Blake-Krebs in KS               [log in to unmask]


In a message dated 7/12/99 6:25:42 PM, [log in to unmask] wrote:

<<I am newly (5 months) diagnosed and now that my initial period of denial is
over I am attempting to augment the information given to me by my doctor
whose lack of specific information in response to my questions is startling.
So I bought a book "Prescription for Nutritional Healing" by Balch and Balch.
The advice in this book is to "reduce your intake of protein, especially if
you are taking levodopa....Try to limit your protein consumption to 7 grams
PER DAY (emphasis mine), consumed mostly at dinner. Eat barley, tofu, yogurt,
beans, lentils and other sources of protein instead of meat and poultry." I
thought about that for a few days, worried about it for a few days more, and
decided that if I followed that regime, malnutrition would get me before PD
did, so I kept looking.
On a website entitled "Parkinsn Current Topics" in a paper entitled "Dietary
Factors in the Management of Parkinson's Disease", by P.A. Kempster, MD. and
M.L. Wahlqvist, M.D. (www.ionet.net/~jcott/homepage/archive/097.html), I read
(among other things), "...that protein restricted to the recommended dietary
allowance (RDA) level of 0.8 g/kg/day allowed a better response to L-dopa
than a usual protein intake of 1.6 g/kg/day. However, the most effective
dietary strategy involves redistribution of protein intake. This requires
protein to be virtually excluded in food taken during the day (protein
content restricted to 7 g with daily protein requirement being made up in a
high protein evening meal." This report was, however, undated, and most of
the footnotes contained references which were many years old. This
observation may be significant in light of my next line of inquiry. I decided
to order some books on diet and menu and found two to order. The first was
recently ordered on-line, "Eat Well, Stay Well with Parkinson's Disease" by
Kathrynne Holden, MS, RD. This is not yet received so I don't know its
advice. The second had to be ordered by Phone from Fazzini Parkinson Disease
and Dystonia/Botulinum Injection Center. They also suggest that while
ordering, one can speak with a dietitian. I called and ordered and wound up
speaking to the "Dietitian's Assistant" (who was also, by the way, the order
clerk) and asked her the questions I am asking in this missive. She said that
the information to limit breakfast and lunch is about 7 years out of date and
that current thinking was to limit protein to 1 g/kg/day and to spread
consumption evenly throughout the day and throughout the food groups. She
also said that dietitians look for a carbohydrate/protein ratio of 7:1. Does
anyone out there know if there is a "school" solution or does it vary with
severity of disease or timing of medication or other parameters of which I am
not aware. Thank you. Paul H Lauer
>>