Hi Barb,
       Ted has been changing for some time I saw it in the chat room he has
not been himself for some time and I have been worried about him. Janice
----- Original Message -----
From: Barb_MSN <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, July 13, 1999 11:11 AM
Subject: Re: TED


> Carole and Ted...
>
> I wonder if Ted might have had any beverages containing caffeine
> prior to the "agitation attack?"
>
>  I've gone to lunch with several PWPs and watched as we each had
> near-mood-altering experiences while downed glass after glass
> after glass of iced tea or colas on empty stomachs while waiting
> for our meals to be brought to the table.   And if that wasn't
> enough, the bus-boy kept topping off our glasses with even more
> the caffeine-laden beverages of every few minutes throughout the
> meal.
>
> We were all FLYING by the time we left the restaurant!
>
> I've seen this caffeine reaction a number of times in Parkies -
> frequently accompanied by dramatically increased dyskenesia, rapid
> speech, and giddiness (plus, it's mighty tough on one's bladder!).
>
> This possibility rang a bell with me upon reading your original
> message, but I felt kinda silly suggesting it at the time.
> However, In an effort not to overlook something so simple that it
> might not be obvious, I'm decided to run it by you.
>
> You're both in my thoughts and prayers....
>
> Barb Mallut
> [log in to unmask]
>
>
> -----Original Message-----
> From: Carole K. Menser <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Tuesday, July 13, 1999 7:43 AM
> Subject: TED
>
>
> Hello --
>
> I talked to Ted this morning and he is sounding so much better.
> Thank God.  And I talked to his sister who arrived last night and
> was at the hospital.  She said he seems fine -- just sleeping a
> lot.  Probably from the Mellaril???   Hopefully, we will both be
> able to fly back home on Friday as planned.  I'm hopeful his neuro
> here will take him off the Melliril when we get back.  I think so
> as he reacted negatively to hearing that they had put him on that
> medication.  We hope to go to the Parkinson's center of excellence
> at UC San Francisco as soon as possible for an evaluation.  Ted is
> totally oriented as he has been all along.  He always knew where
> he was and could answer questions in a totally coherent and
> rational manner.  I talked to him for over an hour on the phone
> when he was in the middle of the crisis.  He responded and did
> what I asked him to do.  He wasn't suicidal or threatening to harm
> anyone.  In fact, he was the one saying that he needed to get some
> help.  He just simply could not control the hyperactivity (I'm
> thinking that perhaps this is a better term than "agitation") from
> the overmedication or combo of meds, it seems to me -- along with
> the severe dyskinesia that he has never before experienced.  I'm
> hopeful that once his meds get straightened out, things will
> settle down a bit.
>
> Thanks again to everyone for all your help, information and
> support.  Keep us in your thoughts and prayers over the next few
> weeks especially.  We'll do the same for you.  :-)  I'll be
> leaving in a couple of hours.
>
> Carole Menser
>