For SANDI and other newcomers---Please note:

With a number of new members, who have lots of questions, it is time to
send the following post again,which has been revised and updated---I'm not
sure if I did post the revised version , so if this is a duplicate, "mea
culpa", but do throw out the OLD one (which does not include janet's and Art's
websites) !
:
################

Here is a partial list of useful addresses,including   some internet sites,
culled from various sources:

*   janet paterson's website--general information and many good links
http://www.geocities.com/SoHo/Village/6263/


*   Art Hirsch's website--lots of good links.
http://www.fortunecity.com/meltingpot/farley/817/blynx.html


*   The easy way to find a MOVEMENT DISORDER SPECIALIST is to dial
1-888-400-2732.  This toll free number will ring in the American Parkinson
Disease Association Information & Referral Center.

*National Family Caregivers Association: (301)942 6430  or 1 -800 -896 -3650
Memberships are $20. yr. for individuals and  includes such things as:
Take Care", an informative mewsletter with advice and resources
CG-to-CG Peer Support Network, to help CG members find a friend in similar
circumstances
"The Resourceful Caregiver", a resource guide filled with information other
advocacy and awareness -raising activities
Costs are in US currency, and Canada residents are asked to include an
extra $12. for postage
A call to the 800# will get you a useful FREE packet of information.

*   Addresses for national PD organizations  in the USA:

        American Parkinson Disease Assn.(APDA)
        60 Bay St.,Staten Island, NY 10301
        (800) 223-2732
        http://www.apdaparkinson.com/  (includes directory of support groups)
       and http://www.apdaparkinson.com/index.htm (good info re: Congress)

        Fax: (718) 981-4399
       E-mail: [log in to unmask]
        *********
        National Parkinson Fndtn.,Inc.
        1501 N.W. Ninth Ave. , Bob Hope Road, Miami,FL 33136-1494
        (800) 327-4545       e-mail:  [log in to unmask]      Fax:
305 548-4403
        http://www.parkinson.org
        *********
      Parkinson's Action Network   - PAN
      Website: http://www.sonic.net/~pan/
      Address: 818 Suite C College Avenue
      Santa Rosa, CA 95404
      Phone: (707) 544-1994  or (800) 850-4726     Fax: (707) 544-236
      E-mail: [log in to unmask]
        OR
     Capitol area office:
     1001 Pennsylvania Avenue, Suite 850 North, Washington, DC 20004
     Phone: (202) 628-2079    Fax: (202) 737-4242
     E-mail: [log in to unmask]
     A nationwide advocacy organization
        *************

 Parkinson's Disease Foundation   - PDF
 Website: http://www.pdf.org
 Address: 710 West 168th St. Third floor -  New York, NY 10032-9982
 Phone: 212-923-4700 or 800-457-6676     Fax: 212-923-4778
 E-mail: [log in to unmask]
        OR
 Midwest office:
 833 West Washington Blvd., Chicago, IL 60607
 Phone: 312-733-1893

*   National Institute of Health Research News Parkinson's Disease
        http://www.nhgri.nih.gov/DIR/LGDR/PARK2/

*   Awakenings
        http://www.parkinsonsdisease.com/  (open forum)

*    The neuro website at harvard is an excellent resource:

http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/pdmain.html#mainmenu
     a psychosocial article is there along with an algorithm on managing pd
and some excerpts from                  the young parkinson's handbook and
a caregiver's handbook
        *********
 Parkinson's Institute
 Website: http://www.parkinsonsinstitute.org/index.html
 Address: 1170 Morse Avenue, Sunnyvale, CA 94089
 Phone: 408-734-2800  or 800-655-2273 (Canada)  or 800-786-2978 (US) Fax:
408-734-8522
 E-mail: [log in to unmask]
  An independent, not-for-profit organization conducting patient care and
research activities in the
  neurological specialty area of movement disorders.
        ************
United Parkinson's Foundation
NOW MERGED WITH THE PARKINSON DISEASE FNDTN.
                   ***********
* National Assn. for Incontinence, PO Box 8310, Spartanburg,SC 29305-8310
1-800-252-BLADDER, OR see their website at  Http://www.nafc.org
--ask for  their resource guide ,listing  products and services for
incontinence
        ***********

  Parkinson Foundations - Outside the U.S.  include:

European Parkinson Disease Association   - EPDA
Website: http://www.shef.ac.uk/misc/groups/epda/home.html
Address:Postbus 46
3980 CA Bunnik
The Netherlands
Phone: (31) 306-561-369
Fax: (31) 306-571-306
E-mail: not found      <<<<<<<<<<<<


Camilla Flintermann, CG for Peter 80/9+
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>

           *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *
           *     Ask  me about the  "CARE " list    *
           *     for caregivers of Parkinsonians   *
           *                               *
           *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *  *

Camilla Flintermann, CG for Peter 81/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>

                        "Ask me about the CARE list for
                        Caregivers of Parkinsonians ! "