Nicole-I'm glad you sent your post.It's the first
step.Although I am a member of the camp who enjoys
pigs,(it helps me cope) I can understand how you're
feeling. You'll get good advice and support here. Like
Don says, you have to remember, we're all rowing the
same boat. Keep writing.
   Carole H.

--- Nicole Gall <[log in to unmask]> wrote:
> I have written numerous letters to the list only not
> to send them.....they
> all entailled my displeasure at having to skip
> around silly nonsensical mail
> that should of been sent person to person instead of
> through the list since
> they held no benefit to anyone but the persons to
> whom they were
> directed........I chose not to send them because I
> feel that negativity does
> not help anyone...and I have seen how all it does is
> generate bickering about
> who should be allowed to do what......Yes its a free
> country.....but how's
> this for an option.....Those who want to hear about
> Parkie Pigdom write the
> author & he make up his own mailing list to send it
> to.....I hate having
> Parkinsons......and to have to deal w/it in terms of
> pig stories brings no
> comfort to me whatsoever.....Yes, this letter is
> turning into the negative
> monster I hoped to avoid.....but it is taking every
> ounce of me to just to
> function right now......Im mad....Im 38 years
> old....soon to be 39...Ive had
> this lousy disease for ten years......Ive watched it
> tear my family
> apart......Ive watched it make me a person I cant
> control.....a person I
> hate.....a very ,very scared "thing"......truthfully
> I dont even feel like a
> human being......I just had what I consider to be a
> nervous breakdown....and
> its to the point where no one in my family cares
> anymore....they are tired of
> watching me destroy myself......they tell me to help
> myself......do they feed
> their brain w/massive doses of mind-altering
> chemicals? NO.......do they know
> what its like to not be able to move w/out popping
> pills all day long?
> NO.....All they know is they are tired of listening
> to me cry......tired of
> me sleeping when I should be awake......tired of me
> sitting in front of a
> computer because sitting is all I can do half the
> time......I have to find a
> new neurologist after my dr of 8 yrs is
> leaving.....I never felt like he
> helped me anyway.....he started me out on large
> doses of medicines when I
> could barely tolerate the minimums.....he knew
> nothing of treating a 31 yr
> old woman w/PD......yet he was some comfort having
> been my dr for so
> long.....and now I am forced to find a new one...I
> feel like I am starting
> all over.....PD is a rollercoaster isnt it
> Bud......Im tired of riding the
> rollercoaster....I want a nice carousel
> instead.....I didnt mean this letter
> to sound like "poor me"....I am just so
> tired....scared...and alone.....here
> comes the hard part.....deciding whether or not to
> send this........I dont
> want to but I feel I have to.....I guess its a plea
> for help.....thanks......
>


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