Bill,

I am a PD patient first and a physician second when it comes to this list.

Yes I know what you mean about that 5 foot channel.  It keeeps me out of
glassware shops though.  My wife doesn't even try any more to get me into
them.(Darn!!!).

I am interested in more of your answers to my questions.  Are you going to the
Vancouver Conference?  If there are a lot of people going I May try to get there
if I can find a netfare.

Charlie

William Harshaw wrote:

> Dear Charlie,
>
>     It somehow seems strange addressing you by your given name even though I
> haven't met you
>
>     Before my surgeries, in Dec of 93 and 94, I was in the 86th percentile
> of PD patients. My dysinesas were so severe that I needed a 5 foot channel
> to walk in so I wouldn't hit a person or thing.  Now, 4 - 1/2 years after
> surgery at the Toronto Western Hospital performe by Drs. Andres Lozano and
> Ronald Tasker, I'm in the 10th percentile.
>
> Are you going to the XIII international Congress onPD in Vancouver from the
> 23rd to 28th?
>
> Cheerss,
>
> Bill
> -----Original Message-----
> From: Charles T. Meyer, M.D. <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Wednesday, July 21, 1999 9:16 AM
> Subject: Re: Energy Levels After Surgery
>
> >Bill,
> >
> >>From the literature written about the stimulator it sounds like your
> stimulator
> >is set to near maximum in all areas.  Have you had a replacement yet? What
> >contacts are you using?  Did you have bilateral or unilateral stimulation?
> Did
> >you develop dyskinesia or have it prior to the procedure? Is it on all the
> >time?  My left side has dyskinesia and akithesesia and therefore needed to
> be
> >cut back on the right IPG.  The left IPG controling the right side may be
> ok to
> >try a higher "dose"  I am generally doing well but it is clearly not as
> good as
> >originally.    The nurse that sets the stimulator is conservsative because
> of
> >possible side effects but going to Chicago about every 2 weeks gets
> tiresome.  I
> >do think we are going in the right direction however. I have never heard of
> >starting that high and fast.  It may be that they just turned it on at high
> >voltage pulse width and frequency not having previous experience with it
> and it
> >worked.  Where did you have it done?
> >
> >Charlie
> >
> >William Harshaw wrote:
> >
> >> Prior to my right side pallidotomy in Deember 1993, I was on 14 Sinemet
> CR
> >> 200/50 and 6 permax  1 mg per day.  After the pallidotmy I was down to 9
> CRs
> >> and 4 permax.  After left side DBS of the globus pallidus and STN in Dec
> >> 94 - I was the first North American patient to have this procedure - I am
> >> down to 4 CRs a day and 2 permax.  My stimulator is a Medtronic Extrel
> model
> >> 1425, settings are 10 volts, 220 hertz and pulse width of 200, unchanged
> >> since hookup.
> >>
> >> My energy level is high on a sustained basis since DBS ; I have
> experienced
> >> no problems and have not had an off period since hookup
> >>
> >> Hope this helps
> >>
> >> Bill
> >
> >--
> >***************************************************************************
> ***************
> >
> >Charles T. Meyer,  M.D.
> >Middleton (Madison), Wisconsin
> >[log in to unmask]
> >***************************************************************************
> ***************
> >

--
******************************************************************************************

Charles T. Meyer,  M.D.
Middleton (Madison), Wisconsin
[log in to unmask]
******************************************************************************************