Yes, I am going to Vancouver.  Big meeting, super speakers.  Hope you can
come
-----Original Message-----
From: Charles T. Meyer, M.D. <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Wednesday, July 21, 1999 12:03 PM
Subject: Re: Energy Levels After Surgery


>Bill,
>
>I am a PD patient first and a physician second when it comes to this list.
>
>Yes I know what you mean about that 5 foot channel.  It keeeps me out of
>glassware shops though.  My wife doesn't even try any more to get me into
>them.(Darn!!!).
>
>I am interested in more of your answers to my questions.  Are you going to
the
>Vancouver Conference?  If there are a lot of people going I May try to get
there
>if I can find a netfare.
>
>Charlie
>
>William Harshaw wrote:
>
>> Dear Charlie,
>>
>>     It somehow seems strange addressing you by your given name even
though I
>> haven't met you
>>
>>     Before my surgeries, in Dec of 93 and 94, I was in the 86th
percentile
>> of PD patients. My dysinesas were so severe that I needed a 5 foot
channel
>> to walk in so I wouldn't hit a person or thing.  Now, 4 - 1/2 years after
>> surgery at the Toronto Western Hospital performe by Drs. Andres Lozano
and
>> Ronald Tasker, I'm in the 10th percentile.
>>
>> Are you going to the XIII international Congress onPD in Vancouver from
the
>> 23rd to 28th?
>>
>> Cheerss,
>>
>> Bill
>> -----Original Message-----
>> From: Charles T. Meyer, M.D. <[log in to unmask]>
>> To: [log in to unmask] <[log in to unmask]>
>> Date: Wednesday, July 21, 1999 9:16 AM
>> Subject: Re: Energy Levels After Surgery
>>
>> >Bill,
>> >
>> >>From the literature written about the stimulator it sounds like your
>> stimulator
>> >is set to near maximum in all areas.  Have you had a replacement yet?
What
>> >contacts are you using?  Did you have bilateral or unilateral
stimulation?
>> Did
>> >you develop dyskinesia or have it prior to the procedure? Is it on all
the
>> >time?  My left side has dyskinesia and akithesesia and therefore needed
to
>> be
>> >cut back on the right IPG.  The left IPG controling the right side may
be
>> ok to
>> >try a higher "dose"  I am generally doing well but it is clearly not as
>> good as
>> >originally.    The nurse that sets the stimulator is conservsative
because
>> of
>> >possible side effects but going to Chicago about every 2 weeks gets
>> tiresome.  I
>> >do think we are going in the right direction however. I have never heard
of
>> >starting that high and fast.  It may be that they just turned it on at
high
>> >voltage pulse width and frequency not having previous experience with it
>> and it
>> >worked.  Where did you have it done?
>> >
>> >Charlie
>> >
>> >William Harshaw wrote:
>> >
>> >> Prior to my right side pallidotomy in Deember 1993, I was on 14
Sinemet
>> CR
>> >> 200/50 and 6 permax  1 mg per day.  After the pallidotmy I was down to
9
>> CRs
>> >> and 4 permax.  After left side DBS of the globus pallidus and STN in
Dec
>> >> 94 - I was the first North American patient to have this procedure - I
am
>> >> down to 4 CRs a day and 2 permax.  My stimulator is a Medtronic Extrel
>> model
>> >> 1425, settings are 10 volts, 220 hertz and pulse width of 200,
unchanged
>> >> since hookup.
>> >>
>> >> My energy level is high on a sustained basis since DBS ; I have
>> experienced
>> >> no problems and have not had an off period since hookup
>> >>
>> >> Hope this helps
>> >>
>> >> Bill
>> >
>> >--
>>
>***************************************************************************
>> ***************
>> >
>> >Charles T. Meyer,  M.D.
>> >Middleton (Madison), Wisconsin
>> >[log in to unmask]
>>
>***************************************************************************
>> ***************
>> >
>
>--
>***************************************************************************
***************
>
>Charles T. Meyer,  M.D.
>Middleton (Madison), Wisconsin
>[log in to unmask]
>***************************************************************************
***************
>