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PARKINSN  July 1999, Week 3

PARKINSN July 1999, Week 3

Subject:

Re: Ted and Carole checking in

From:

"Charles T. Meyer, M.D." <[log in to unmask]>

Reply-To:

Parkinson's Information Exchange <[log in to unmask]>

Date:

Sat, 17 Jul 1999 18:44:40 -0500

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (61 lines)

Glad you are back and all is OK. Thanks for keeping us informed.

Charlie

"Carole K. Menser" wrote:

>  Hello again -- Well, we are back from our ordeal.  Ted was released
> Wednesday morning and we flew home Thursday.  We just barely made it
> back by the hardest -- a twelve hour trip with two changes -- pretty
> pooped out, to say the least.  The attending physician in Mental
> Health in the hospital there was quite nice and spent a lot of time
> with us on Wednesday.  He explained why they had put Ted in the psych
> ward until they got things under control and they had offered on
> Tuesday to move him to a regular medical ward.  At least that's
> something positive.  I'm not sure if this had anything to do with his
> sister showing up on Tuesday morning or not and me coming on
> Wednesday, but at least they tried to explain the situation.  The
> psychiatrist also said that when he first saw Ted he was acting like
> someone who was experiencing way too much dopamine stimulation and he
> seemed to agree with us that this was a problem with medications.
> Unfortunate that the neuro there pulled him off Tasmar cold turkey but
> it is a done deal now.  They also were giving him his Parkinson's meds
> at 8 a.m., 12 noon, and 5 p.m. -- when they remembered to give them at
> all.  How is that for evenly spaced timing?????  Not to mention the
> fact that they had no Mirapex in their pharmacy and had to wait until
> someone could get some there from the hotel which was Monday evening,
> I think.  So, at best, he was getting his meds hit and miss for first
> few days of this. So we get back home Thursday night and go in to see
> the neuro here on Friday morning.  He just couldn't understand what
> happened.  He wouldn't discuss the possibility of either
> overmedication or dopaminomimetic psychosis at all.  He did take him
> off the Mellaril and put him on Risperdal b.i.d.  -- plus continue
> Sinemet CR 50/200 t.i.d. and Mirapex 1.5. mg. t.i.d.  And he said he
> wanted to check him IN A MONTH.  I'll tell you, at this point in time
> nothing should surprise me.  It's just that if I had a patient that
> had been through what Ted has, I'd be checking him in a week to ten
> days at the max.  Unfortunately, our choice of neurologists is
> extremely limited.  His old neuro was much better but moved out of the
> country and sold his practice to this one.  And the first neuro we saw
> here had little patience or understanding.  He is the one who told Ted
> that eating the sprouted fava beans (which we were experimenting with
> at the time) could kill him!!!  The neuro had a resident or intern in
> the room with him that day and Ted said it was all the young
> doctor-to-be could do to keep from bursting out laughing at that
> remark.  Anyway, we decided to move on to another neuro at that
> point. Overall Ted is a lot better although has slowed way down with
> the medication changes and all the stress his body has been through.
> We are hoping to get rested and then see about getting an appointment
> at UC San Francisco's center of excellence.  It's about a 4 hour drive
> one way but that is well within reason. Just thought we'd check in and
> let you know our continuing saga.  Again, thanks so much for all the
> information and support.  It was most helpful.  We're still hanging in
> there and carrying on. Carole and Ted  :-)

--
******************************************************************************************

Charles T. Meyer,  M.D.
Middleton (Madison), Wisconsin
[log in to unmask]
******************************************************************************************

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March 2001, Week 5
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March 2001, Week 3
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March 2001, Week 1
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February 2001, Week 1
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January 2001, Week 1
December 2000, Week 5
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December 1999, Week 5
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December 1998, Week 5
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March 1998, Week 1
February 1998, Week 5
February 1998, Week 4
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February 1998, Week 1
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January 1998, Week 4
January 1998, Week 3
January 1998, Week 2
January 1998, Week 1
December 1997, Week 5
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December 1997, Week 3
December 1997, Week 2
December 1997, Week 1
November 1997, Week 5
November 1997, Week 4
November 1997, Week 3
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December 1996, Week 5
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February 1996, Week 1
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December 1995, Week 5
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December 1994, Week 5
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