Ida, Erika, Kees, et al....

A note to whichever one of ya who said that
(paraphrasing) At first the PWP having a pallidotomy
will feel euphoric, then feel not so good, and then will
feel sort of better (errrr... maybe I should have done a
direct quote?).

Speaking ONLY from my own experience, I had a
unilateral (one side only-type) pallidotomy on Oct. 24,
1994, with outstanding success.   During the ensuing
five years my RIGHT side has been functioning at
about 98% of normal.

Mind you, the PD is now developing on my primary
side - the left side - externally and  internally, but had
I not had the pallidotomy when I did, I'd be troubled by
having BOTH hands and legs being dysfunctional
as the left-side-symptoms creep up on me.

I might add, the internal symptoms I've developed
- breathing, speaking, eyes pulling outward,
concentration (as in lack-of) etc.., started about a
year post-pallidotomy and since I've had PD for
almost 25 years, and am familiar with many of
the nuances of this hateful disease, I do NOT
attribute these symptoms to the pallidotomy. They're
classified under the category of "With PD, SH*T
HAPPENS," as far as I'm concerned.<sigh>

Sooooo... in my opinion,  one should expect the
best prior to having a pallidotomy, and hopefully
that's what they'll get!

Barb Mallut
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-----Original Message-----
From: John Lawley <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, August 22, 1999 6:51 PM
Subject: Re: Kees Paap PD, but mail in Dutch


>-----Original Message-----
>From: Ida & Andre Kamphuis <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Monday, August 23, 1999 7:45 AM
>Subject: Kees Paap PD, but mail in Dutch
>
>
>>Listmembers,
>>I lost the new e-mail adress of Kees Paap. I worrie a bit about
him,
>>because immediately after his pallidotomy he wrote he was fine
and from
>>than he was silent. So I'll ask him.
>>
>>Kees, je stilte maakt mij ongerust. Als je dit bericht leest,
laat dan even
>>weten hoe het met je gaat. Als het niet zo goed gaat, kan het je
misschien
>>een beetje geruststellen dat het na een pallidotomy in eerste
instantie
>>vaak fantastisch gaat, waarna er een tijd komt dat het allemaal
tegenvalt,
>>maar dat het uiteindelijk toch meestal weer meevalt. Die tweede
fase zou
>>vaak een stuk beter te verdragen zijn, als je van te voren op
deze
>>mogelijkheid gewezen zou zijn. Maar ik hoop dat ik er naast zit
en dat het
>>gewoon goed gaat.
>>Ida
>>
>>--------------------------------------------------------------
>>Vriendelijke Groeten / Kind regards,
>>
>>Ida Kamphuis                            mailto:
[log in to unmask]
>>
>Somewhat "rusty" translation by Erika.
>Please allow me to translate, as the message may be useful to
others as
>well.
>
>Kees, Your silence causes me concern. Should you read this
message please
>let us  know how you are doing.
>If all is not so well, it might reassure you that after a
pallidotomy at
>first things go fantastic, after which a period follows when it
seems all
>disappointing, but in the end it turns out  to be not so bad
after all.
>The second fase of this sequence would often be a lot easier to
handle if
>one has been alerted to this possibility in advance. But I hope
that I am
>mistaken and that all is going well.Ida.
>
>I hope no-one minds me popping in with this translation. I love
the way this
>web is used to help, support and care, as well as inform. Good on
ya, Ida!
>Love to Janet and all, from Erika.