Here it is again, without the 'non-pd' in the subject line
---------- Forwarded message ----------
Date: Sun, 29 Aug 1999 14:01:28 -0400 (EDT)
From: Barbara Patterson <[log in to unmask]>
To: parkinsn <[log in to unmask]>
Subject: Spin (off) City - An invitation to SPARKLE & CARE, etc


Hi,all...I haven't been reading my email much since about Thursday. One
of the faculty for whom I work has a 4-day workshop to conduct in Sweden
and discovered that the overheads she thought were acceptable for use
there were not, so I've been working on them both at the office and at
home.  So, if any of our members in Sweden are attending a workshop re
Problem-based Learning, take note of the superb overheads and
handouts... done by one pwp!  :)
--
I have been asked by some members to comment on the latest list 'heated
discussion' about SPARKLE.  I think SPARKLE is a great idea!  I had been
very concerned about the volume of email this list generates and, as you
all know, I don't want ANYONE'S voice silenced.  The quality of the humour
on the list is excellent and the people involved in it were so obviously
enjoying themselves, (and others enjoyed reading it) that it seemed a
shame to have it stopped. It's sometimes difficult to find anything
amusing about pd so many of us really enjoy the occasional silliness.
So, having SPARKLE as a sub-list to PARKINSN has really given us the best
of both worlds.  Subscribe to SPARKLE, if you enjoyed the humour aspect
of the PARKINSN list.

The CARE list functions in much the same way except it is for our
hard-working, long-suffering, blessed caregivers.  It, along with others,
works in conjunction with the PARKINSN in trying to fill the needs of the
extended family of people who live with pd, either in ourselves or our
loved ones.  Subscribe to CARE if you need the privacy to discuss care
giving concerns with other care givers.

I am not sure of the number of 'spin-off' lists from this one since it
started in '93.  One of the first was a list about SDS...some folks
involved in the care of people with this problem had subscribed to the
PARKINSN list until they began their own.  I'm not sure if it is still in
use or not but there definitely was a need for it.  There are also some
language-specific lists, eg, the French list.  It must be quite difficult
for people whose first language is not English to understand what some of
us write so these language-specific lists must be highly appreciated by
their members.


Last, but not least, I would like to offer a sincere apology and a thank
you to Janet Paterson.  Earlier this summer, when I was going to be away
from internet access for over a week, I asked Janet if she would consider
'baby-sitting' the list until I came back.  There is quite a bit of
background work to do re list ownership and these things can't just be
ignored.  Janet kindly agreed to do this and, in usual Janet-fashion,
gave it a whole-hearted effort.  But, lately, she has felt that being a
co-owner in many ways limited her freedom of speech on the list.  Instead
of reading the messages she sent as 'from Janet', they were read as 'from
the listowner' and were perceived as having more 'weight'.  At one point,
Janet not only was going to give up helping with the list, but also the
list itself....thanks for staying with us Janet and I am sorry you felt
stifled....

As has been said many times before, since we can't see or hear each
other, many written words are mis-interpreted.  Was that written in an
angry tone of voice?  A pensive tone?  An attempt to interpret what
another has written?  We all get angry at one time or another and say or
do things we'd like to take back or 'rephrase'.  Let's keep an open mind
and an open heart for each other in our common goal of defeating pd and
living well until the 'Day of the Cure'.

Barb


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Barbara Patterson                               [log in to unmask]
HSC 2J22                                        905-525-9140, ext. 22403
                        School of Nursing
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