Dear Sharon: YES YES YES Have recently begun a trial
on ReQuip which resulted in exactly what you
described-the swelling, flushing, etc. Plus nausea and
insomnia. For ME, this particular agonist's
side-effects are agony-almost worse than the "unwanted
companion" itself.
Carole H.


--- Sharon <[log in to unmask]> wrote:
> Brian,
>
> I'm having a looong night/morning and perhaps am a
> bit groggy (could
> that be intoxicated from lack of sleep??), but would
> you please explain
> again your comment ----
>
>      "The exposure if you start with an agonist on
>     diagnosis,
> would be in the region of 60-100        Pergolide
> years. ...... but at
> least my                    exposure is only 15
> Pergolide years."
>
> I did not have a positive response to Mirapex or
> Requip and am still
> wanting to gather as much info as possible about
> those drugs.
>
> I am wondering if any one else had a similar
> experience as I had on two
> different occasions-  where I flushed all over my
> body and felt quite
> bad and then found on my left chest and left
> shoulder blade what I
> describe as spread-out finger prints of what looks
> like varicose veins.
> The same thing happened again on my right should
> blade.  And the
> fingerprints remain as my questions remain.  I spent
> a very long time
> coping with swollen ankles and legs, beet red feet
> and pain that almost
> made you not want to walk, in addition to the awful
> "instant sleep"
> problems.
>
> I feel it is important that I give my physicians as
> much detailed info
> as possible about my experiences so he/she may be
> quicker to question
> and investigate someone elses reactions to a
> specific drug, as it may
> save them some unnecessary pain or discomfort.
>
> While we all would love for our physicians to have
> "the answers", I feel
> it is reasonable for us to remember that they are
> learning also about
> our unwanted companion.  I've taken a bit too long
> to trust my
> instincts--and I know better, because I have good
> instincts,--but I no
> longer think, well it's just the way it is, the PD
> is making me feel
> like this...NO, I listen to my body and I question,
> and I participate!
> I've started keeping a journal about us--Me and
> PD--and it helps with
> the questions and it helps the doctor who is working
> hard to help
> me.....it's a TEAM effort, and thanks to all the
> special people on this
> list it is a BIG TEAM EFFORT!!
>
> Guess I woke up!!!!
>
> Good morning to you Hilray!  I'm going to bed before
> I have to get up!
>
> Have a wonderful Monday Holiday everyone!
>
> Sharon Eissele
>

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