Re the post from PAN. I did call Kathy -we have one week to get this done. I
have found it unbelievably hard to get good friends to write. Well I am going
to push harder, all I can do. They seem to be  unaware of what PD is and that
we are the politicians boss. If they don't do what we want at least we can
vote. ( wish we were the tobacco lobby ). Senator Kyl is only one, all of you
have a couple. Mine aren't so hot either.. However those letters must be in by
the end of next week. Write.

I find it unbelievable that people do not or do not know how to take part in
this government. I guess we really have the government we deserve.  My dentist
was more willing than most. Nice man and he will write. I even am surprised to
find that my friends expect David to get better. Live and learn. I needed to
vent and you are on the receiving end. Thanks, Nita

Camilla Flintermann wrote:

> Here's Kelly's answer to what some asked me about after I sent  a post to
> this list urging folks to write about PD $$$$$$$   Apparently the problem
> lies with Sen. Kyl (AZ) not with the wording of my post..
> ********
> >Date: Fri, 10 Sep 1999 10:18:58 -0700 (PDT)
> >From: Kelly Abbett <[log in to unmask]>
> >Subject: Re: Appropriate or fund ?
> >To: Camilla Flintermann <[log in to unmask]>, [log in to unmask]
> >Cc: [log in to unmask], [log in to unmask]
> >MIME-version: 1.0
> >Original-recipient: rfc822;[log in to unmask]
> >
> >Hello Camilla, and sorry for taking so long to respond. I use this account
> >just for list mail and do not check it every day.
> > Yes; the money called for in the Udall Act has not been fully
> >appropriated.  "Appropriated" is really a synonym for "funded" - ie, the $
> >amount has been specified in legislation, but the $ must be
> >actually allotted to fund the research through each year's appropriations
> >bills.
> >
> >Senator Kyl's explanation for the lack of federal investment in PDresearch
> >is rather curious - the NIH annually receives more PD research proposals
> >than it can fund.
> > I hope that explanation is intelligible.  Please contact me or PAN
> >(800-850-4726) with any further questions.
> >
> >Kelly
> >------------------
> >Kelly Jean Abbett
> >Program Associate
> >BASS and HOWES
> >[log in to unmask]
> >tel: 202-530-2900
> >fax: 202-530-2901
> >
> >
> >--- Camilla Flintermann <[log in to unmask]> wrote:
> >> Dear Kelly--  You may heve seen the message I sent
> >> to the PD list, using
> >> your sample "script". In the introduction I said :
> >>
> >> "Friends -- Nita Andres has made it very easy for us
> >> to know where to put
> >> pressure for full funding of the Udall Bill, which
> >> was SUPPOSED to provide
> >> money for PD research. As you know, it was passed by
> >> Congress, but the
> >> money which was "approved" has not yet been
> >> "appropriated", so can't be
> >> spent !"
> >> ***
> >>
> >> I've rec'd the following comment/question from BERNARD BARBER, and
> >>thought  you could clarify, as your script refers to "appropriations".
> >>
> >> Date: Fri, 03 Sep 1999 20:41:02 -0700
> >> From: "Bernard Barber,Ph.D." <[log in to unmask]>
> >> Subject: Fwd: Meeting with AZ Sentor Kyl
> >>
> >> >Date: Fri, 03 Sep 1999 20:31:44 -0700
> >> >To: [log in to unmask]
> >> >From: "Bernard Barber,Ph.D." <[log in to unmask]>
> >> >Subject: Meeting with AZ Sentor Kyl
> >> >Cc: [log in to unmask]
> >> >
> >> >Hi Camilla,
> >> >
> >> >Perhaps you can help me with my confusion.
> >> >
> >> >A group of Pan folks met with our Senator Kyl to express our concern
> >>re:the Udall bill being appropriately funded for Parkinson research. It
> >>is my impression, and that of other members that he told us the monies
> >>will be appropriated for such research, and that the problem was that
> >>research
> proposals had not been submitted.
> >> >Now, your note suggests that we write to get the money appropriated.
> >>Perhaps you can clarify this for me. I am Cc Maryhelen, as she was also
> >>present, and felt that was what Kyl had said.
> >> >Thanks,   Bernie