Dear friends,

A question: has anyone asked Senator
Specter, or any other Senator, ( Sen. Harkin is
the Minority Ranking Member) if my printed
Testimony  will be mentioned at all, at
the microphone?

Sen Specter's Appropriations tel no: 202-224-7216 (Bettilou Taylor)
Sen. Harkin's Appropriations tel no.: 202-224-7288 (Ellen Murray)

I still do not know if it will be mentioned,
and I have phone calls and e-mail
asking that specific question.

Mr Specter or whoever has the
gavel, and noone else, could do this.
 's


ABOUT MY TESTIMONY:

I am told that it has been included in the packet
that the sub-Committee Members
received, along with that of the 5 attending
witnesses.

I hope that what I said helps.  I was asked
by Senator Snowe to give a DESCRIPTION
of the daily tasks and symptpms I have
to cope with every day.  It was felt by
the Committee that it would be extremely
unusual and valuable to hear or read such]
a detailed description of PERSONAL medical
details, from a person who actually has PD
(or young-onset PD)
.  It is called "Ivan's testimony"
on PIEN.

I stayed up typing and e-mailing and phoning and editing
non-stop since last Friday, including TWO ENTIRE
NIGHTS (Saturday and Sunday) until 4 AM.
What a marathon.

So please forgive me if I am
a little bit "in the dark."

Ivan Suzman
:-)



On Tue, 28 Sep 1999 08:51:55 -0400 Camilla Flintermann
<[log in to unmask]> writes:
>Finally got a reply to my question---take note:
>
>
>>To:
>>From: Camilla Flintermann <[log in to unmask]>
>>Subject: RE: Senate hearing
>>Cc:
>>Bcc:
>>X-Attachments:
>>
>>>Date: Tue, 28 Sep 1999 08:36:20 -0400
>>>From: [log in to unmask]
>>>Subject: RE: Senate hearing
>>>To: [log in to unmask]
>>>MIME-version: 1.0
>>>Original-recipient: rfc822;[log in to unmask]
>>>
>>>Although we are not having live coverage of the Senate Hearing on
>>>Parkinson's Disease, we will air it later tonight after Congress
>adjourns.
>>>You can obtain scheduling information the following ways...
>>>
>>>1.   Call our Schedule Hotline at (202)-628-2205 after 7:00pm ET
>tonight.
>>>
>>>2.    Visit our schedule website at
>http://www.c-span.org/guide/schedule/
>>>
>>>3.  You can also subscribe to our e-mail schedule service at
>>>http://www.c-span.org/guide/alert2.htm.
>>>
>>>
>>>
>>>-----Original Message-----
>>>From: Camilla Flintermann [mailto:[log in to unmask]]
>>>Sent: Monday, September 27, 1999 7:45 PM
>>>To: [log in to unmask]
>>>Subject: Senate hearing
>>>
>>>
>>>On Tues. 9/28 you list  at 9:30 on C-SPAN 2 a "Senate session". I
>need to
>>>know if this is the hearing before the Labor Appropriations
>Subcommittee on
>>>funding for Parkinsons disease, set up by Sen. Specter ?
>>>
>>>Camilla Flintermann, CG for Peter 81/70/55
>>>Oxford, Ohio
>>>http://www.newcountry.nu/pd/members/camilla/one.htm
>>><[log in to unmask]>
>>>
>>>                              "Ask me about the CARE list for
>>>                      Caregivers of Parkinsonians ! "
>>>
>>>
>>
>>
>
>
>
>       Camilla Flintermann,
><[log in to unmask]>
>
> http://www.newcountry.nu/pd/members/camilla/one.htm
>
>             "  Knowing when to insist, and when to let be,
>               is,perhaps, a lifetime learning experience  ."
>                              --Mary McCurry

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
********************************************************************