> from Walter:
>
> The group that seems to be missing as public advocates for PD
> research are the researcher, clinicians and doctors who are involved
> with PD research and treatment. Is it my impression that they seem to
> be above the fray? If so, how can they become involved?
>
---------------------------------------
Charlotte Mancuso wrote:

> Hello,
>
> On September 28, there was a Senate hearing before the L/HHS/E appropriations subcommittee
> regarding focused funding for PD research. Among those testifying (Michael J. Fox, Jim Cordy,
> NPF, Joan Samuelson, PAN, Dr. G. Fischback head of the NINDS, National Institute of
> Neurological Disorders and Stroke), was Dr. William Langston, Founder and President of the
> Parkinson's Institute in Sunnyvale, CA. Dr. Langston is a world-renowned expert in
> Parkinson's research. He discovered MPTP used to create a Parkinson's animal model from
> which to study the physiology of the brain, the disease process, and to test new therapies,
> and he sees patients in the clinic.
>
> But I know what you mean. Even though they partner with groups like PAN and testify at
> hearings, give talks, and even speak to the media, they usually do maintain a sort of detached
> objectivity that really is kind of traditional in the sciences. I'm sure there are political
> reasons, conflicts of interest issues, and so on; but I liken this demeanor to the research
> papers they write that are always in passive voice, which gives their work the tone of this
> same detached objectivity, e.g.,
>
> the substantia nigra was lesioned and parkinsonian symptoms were
> observed...
>
> (or perhaps the detachment of a past President who doesn't want to take responsibility for
> some debacle, such as the famous or infamous phrase "mistakes were made," uttered by President
> Reagan during the Iran-Contra scandal.)
>
> Well, I digress-- just some thoughts...I don't know how to involve them more. Call Pan when
> this busy funding period is over: 1-800-850-4726.
>
> Charlotte
>
>
> -----------------------------------------
> Charlotte Mancuso
> ***************************************************
> For advocacy, medical, and other PD-related material, go to:
> http://www.onelist.com/subscribe/CurePD-NorCal
>

--
Charlotte Mancuso
***************************************************
For advocacy, medical, and other PD-related material, go to:
http://www.onelist.com/subscribe/CurePD-NorCal