Dear list-readers,

Hilary's right on the core issue: I do not have the
resources to pay caregivers, since I receive $687/month.
And the agencies underpay my  helpers (it is now a
rate of $7.30/hour, as of Octrober 1- a vast improvement
over the $6.25 and even $5.25 I have had to contend with,
but still low.

I am very tired, but a lady has appeared to help me,
at my door, who works  with an African minister I have met.
He is a leadaer amongAfricans here in Portland.  I am trying to adjust to
her
impact. and I am fortunate that she heard about me.

Her name is Jean.  She will be staying here OVERNIGHT tonight,
Monday, Tuesday and Wednesday.  Tomorrow I hope to have
had a little more rest to figure out what's next.

If I ever go to a hospital due to exhaustion, I would go to Mercy
Hospital in Portland.

I have received two off-list letters I must answer.  One is about
assisted
living, or not. The other asks me about
resources for a young family with many parallels in the life of its
 younger-onset  PWP to the elements of my own life story.


Also , after waiting for one year, the Fact-Finding Conference of the
Maine Human Rights Commission, to investigate FOUR categories
of  possible discrimination by the City of Portland lawyers against me,
will
take place 9:30 AM, location undecided so far.

There is suddenly not enough time or rest in a day.

I can also be reached by telephone.


Ivan  (:-@   (yawning)


On Sun, 17 Oct 1999 16:16:28 -0500 Hilary Blue <[log in to unmask]> writes:
>what exactly do you mean by hospital?
>One night emergency ?
>or long term?
>I have to continue believing that there is some other solution.
>I cant brelieve there is no other solution,.
>How about a direct appeal to eg Bill Gates
>                                Nathan Slewitt
>                                                        Arlen Specter
>                                                                The
>Udall family
>
>Michael J Fox
>
>Some of these people have gone on record saying they want to do
>something for
>humnaity, or a segment thereof. Maybe they woud react to a plea from
>an
>individual member of that humanity, an individual who, at that, has
>contributed far more than his fair share.
>Hilary Blue.
>
>
>
>
>
>
>Ivan M Suzman wrote:
>>
>> THANKS CLARE /CAMILLA  +   HILARY
>>
>> My neighbor drove me to Tom Allen's..I gave him my testimony.
>>
>> Got home, clock ticked by, caregiver nowhere to be seen.
>> My 5 days  per week CG, from 4-7 PM. + 8PM-midnight, + sleep-over
>> was a no-show  last night for the 2nd time.  I learned at 10PM that
>> this caregiver has QUIT without telling me.
>>
>> Woke up in deep off-state unable to walk  at 330 AM.
>> called Hilary 6 times..She was my anchor.
>>
>>  This morning I called several church and synagogue people
>> early this AM asking for emrgency  CG coverage. No luck so far,
>>
>> Having dyskinesias and then exhaustion and then crashing
>> into foot cramps with toes curling under.
>>
>>   Hope that someone will appear to help.
>> Nights alone too complicated.
>>
>> IVAN
>>
>> On Sun, 17 Oct 1999 10:59:36 EDT Clare Wilson <[log in to unmask]>
>writes:
>> >Hi Camilla.  Good thinking ahead!  I've faxed Ivan's testimony, in
>a
>> >cut-and-
>> >pasted transcript to reduce its size, to the four chairman/ranking
>> >congressmen last evening. None of the content was cut out, just
>the
>> >headers, erratic page numbers, etc.  A cover letter was added to
>each
>> >individual describing its history, its purpose, and its
>disappearance
>> >
>> >Today I'm emailing as long as I can sit here and type.
>> >
>> >Clare
>>
>> ^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
>>  Ivan Suzman        49/39/36       [log in to unmask]   :-)
>>  Portland, Maine    land of lighthouses         77 deg. F   :-)
>>
>********************************************************************

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses      60     deg. F   :-)
********************************************************************