Hi janet: I love the way you are SO reluctant to speak your
mind. Your 2 cents worth is more like $2.00 worth. I
especially like the part about SOME doctors not noticing
(some of my best friends, etc.) that they weren't gods
anymore. But I would, being a nurse.       Carole H.

--- janet paterson <[log in to unmask]> wrote:
> hi all
>
> At 21:21 1999/11/08 -0500, tina wrote:
> >I am looking for any info on Mirapex side effects....The
> only
> >side effect I can find is about falling asleep.  I am
> having
> >bad joint pain in my knees.  Just started saturday, and
> I started
> >my full dose of Mirapex friday (1.5mg)day.  I am also on
> Amantadine
> >(generic for Symmetrel).  Still having tremors and
> balance problems,
> >so far Mirapex really hasnt helped me.  I already have a
> call
> >into my doctor, waiting for return call.  Just trying to
> get more
> >info before I see the doctor. He will not put me on
> sinemet because
> >he says I am too young.  He said the longer you take it,
> the worse
> >side effects you get down the road. He said he only
> gives it to
> >his older patients.  My symptoms are tremor in right
> hand, and
> >head...balance problems, fallen 5 times in past 2 weeks,
> joint
> >pain in knees, right leg dragging and freezing (which
> has caused
> >most of falls), depression, fatigue, and trouble walking
> any
> >distance.  I am only 31 yrs old.  Any info would be
> greatly
> >appreciated.  My doctor is really good, he and his team
> of doctors
> >are third in the nation in pallidomy surgeries.  I
> really am just
> >looking for ideas or thoughts to bring up to my doctor
> when I go
> >see him. Thanks, and sorry for being so winded.
> >Tina-----Fairfield, Ohio
>
> tina
>
> sinemet was a miracle for me
> i started it in 1988 when i was diagnosed
>
> i had 'ignored' my walking problems for so long
> that my diagnosing doctor said that my symptoms were
> incapacitating
> [i was having difficulty walking, typing and writing]
> and that justified putting me on sinemet immediately
> which resulted in my symptoms virtually disappearing for
> years
>
> the dopamine agonists generally are good for treating
> early symptoms
> for a relatively short time
>
> good sinemet management is the key to long useability,
> IMHO
>
> 11 years later
> i now have "on" and "off" times
> when my symptoms are under control and when they are not,
> so sinemet doseage and timing becomes a fine art
> and require close attention and patience
> but that's a small price to pay for the benefits
> [again, in my humble opinion]
>
> personally
> i think your doctor has an insensitive if not sadistic
> attitude
> toward you and your symptoms
> [speaks of 'soldiering on' and 'pull yourself up by your
> bootstraps']
>
> are you still working?
> why not ask him what he would do if he were in your
> shoes?
>
> if you have clinical depression
> it is eminently treatable and curable and should be
> addressed
> i know it well and it is not something to be treated
> lightly
>
> also a couple more two cents
> surgery is the option of last resort for pd symptoms
>
> being skilled in same does not necessarily automatically
> guarantee skill or sensitivity in med management
>
> how many young onset patients does your doctor have?
>
> to quote one of my heroes
> the era of 'doctor as god' is over, maybe he hasn't
> noticed?
>
> janet
> getting on another rant
>
> janet paterson
> 52 now / 41 dx / 37 onset
> e-mail - [log in to unmask]
> web-site -  http://www.geocities.com/SoHo/Village/6263/
>



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