--- janet paterson <[log in to unmask]> wrote:
> Date: Thu, 25 Nov 1999 14:04:51 -0500
> To: steve whysall <[log in to unmask]>
> From: janet paterson <[log in to unmask]>
> Subject: Re: FWD: Confusion/Ivan [from Camilla Flintermann]
>
> hi steve
>
> please forward this to the list per camilla's request
> thanks
>
> janet
>
> --------------------------------------
> >Date: Thu, 25 Nov 1999 13:03:07 -0500
> >From: Camilla Flintermann <[log in to unmask]>
> >Subject: Re: FWD: Confusion/Ivan [from Camilla Flintermann]
> >
> >Dear Ivan--- my impression of your financial source was based on the
> >experience a year or 2 ago when there was some discussion on PIEN of
> >sending funds to help you pay for better-qualified CGs, because you had
> >such trouble getting good dependable ones.  At that time it was my
> >understanding that you said you could not be sent money--that it would have
> >to go into an account that would be set up just for that purpose, and pay
> >aides directly--you could not receive it without jeopardizing your income.
> >If I misspoke in referring to it as "assistance", I regret that--I had no
> >intention of  embarrassing you.
> >
> >>>
> >>>I am not on "public assistance."  I receive social security
> >>>due to disability (SSDI).  Public assistance somehow
> >>>sounds like doled out , rather than returned to you
> >>>in your  later years after you had it taken out of your paychecks.
> >>>
> >>>People who are retired on social security can surely
> >>>receive unsolicited gifts.  Doesn't Camilla overstate
> >>>her case? I'm kind of shocked at her attitude.
> >
> >(see my explanation above--do you recall that  time? )
> >
> >>>Also, I think it must be made clearer that I have not
> >>>solicited money. Someone I never heard of (PaulLauer?)
> >>>started the idea- I really don't like the unstated
> >>>suggestion that people are giving to me, at my urging, and
> >>>moreover,  against reasonable moral grounds, and also,
> >>>Barbara Patterson's will.  It's a guilt trip, the way
> >>>I read it!
> >
> >I  must repeat the fact that I am not on the list--I am supposed to be
> >packing for our move in a few weeks!  Janet fwd posts to me that she
> >thought pertinent, starting I think with Paul's,  and I replied, trying to
> >make it clear that I had NOT seen the entire discussion.  I don't think I
> >ever said that  you had "solicited funds", as it was clear the idea came
> >from Paul.  But I recall a comment about "pledges to Janet" and your
> >comment  to the effect that it was "not yet" appropriate, or words to that
> >effect.  From that it seemed that you implied it might be appropriate later
> >on, and that disturbed me.  I think others got the same impression, as
> >there were other fwd posts about transfer of funds to US from Canada, etc.
> >Nor do I think Barbara Patterson was particularly chastising you--just
> >responding to the traffic on the list with a caution as follows:
> >
> >Barb wrote in part:
> >All in all, I think it best to keep money matters
> >>(other than urging (nagging?) for research dollars) completely off the
> list.
> >>Of course, if you wish to contribute...perhaps privately...off the
> >>list..would be better.
> >>
> >> Please make any phone calls, write letters in support of Ivan...but
> >>please don't involve the list in any donations of money.
> >>
> >>Barb
> >
> >Are you now saying that gifts to you from individuals would NOT in any way
> >affect your eligibility for the home care services you receive? I
> >understood these were a "benefit" and not paid for by you from your SSDI?
> >I recall that on occasion you paid an aide a little extra out-of-pocket, to
> >add to the  very meager amount they receive from the agency that pays them.
> >Please correct me if this is wrong.
> >This confusion is further evidence of the difficulty of explaining your
> >very complex situation. At different times you have written about different
> >aspects of it, and I was very glad when you told me in your phone call that
> >you would get in touch with  the PWP who has advised and helped in the
> >past. He may not be the whole solution now, but  he seems like a logical
> >place to start.
> >
> >I do not intend to return to PIEN for several weeks and would prefer that
> >mail be sent to me offlist, rather than continue to impose on Janet's good
> >nature with all the fwdg--I had no idea there would be so much.  I second
> >Barbara's suggestion that this matter be taken off the list, and those who
> >wish to write or call feel free to do so, as Ivan has suggested.
> >
> >Camilla Flintermann, CG for Peter 81/70/55
> >Oxford, Ohio
> >http://www.newcountry.nu/pd/members/camilla/one.htm
> ><[log in to unmask]>
> >
> >                             "Ask me about the CARE list for
> >                     Caregivers of Parkinsonians ! "
>
>

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