>Return-Path: <[log in to unmask]>
>Date:         Tue, 4 Sep 2001 10:27:02 -0400
>From: "L-Soft list server at UofT (1.8d)" <[log in to unmask]>
>Subject:      You are now subscribed to the PARKINSN list
>To: Janet Paterson <[log in to unmask]>
>
>Tue, 4 Sep 2001 10:27:02
>
>Your subscription to the  PARKINSN list (Parkinson's Information Exchange
>Network) has been accepted.
>
>Welcome! You  have joined the  PARKINSN mailing  list, also known  as the
>Parkinson's Information Exchange Network (PIEnet).
>
>Please send  a message to the  list members (if you  want to) introducing
>yourself,   perhaps   telling   us   how    you   found   us,   and   any
>Parkinson's-related topics you would like.
>
>The     address    for     posting    messages     to    Parkinsn     is:
>[log in to unmask]
>
>Let me introduce myself. I am a secretary for four faculty members in the
>School  of  Nursing,  McMaster  University. In  September,  1992,  I  was
>diagnosed as having Parkinson's ... hence my interest in this list.
>
>My purpose  in starting the  list was  the exchange of  information about
>Parkinson's. The  list rapidly changed  into the largest support  group I
>know.  Besides its  original purpose,  the list  has become  'a means  of
>feeling connected'  to others... a way  of feeling we're not  alone... of
>making the road of living with pd easier to bear.
>
>I have always felt that we hear  each other better on the list because we
>can't see each  other. Symptoms, age, colour, race,  don't interfere. The
>list  knows no  countries, has  nothing to  do with  money... there's  no
>"what's in it for me?"
>
>But these  same qualities mean  our words are open  to misinterpretation.
>Since others can't see our wry smile or wink or hear our tone of voice, a
>goal of keeping it "short & sweet" can result in appearing abrupt.
>
>Also, the same  word can have different meanings and  different shades of
>meaning to different people in different  areas of the world so care must
>be taken in both your writing and your reading of the messages.
>
>Flaming and selling  are not allowed. Please send messages  in plain text
>only. Do  not make any  changes in  medication or any  treatments without
>consulting your physician. Be kind.  Be honest. Share the time fairly....
>if you think you  have taken more than your share  of the list resources,
>you just might have.
>
>Keep it generally  related to Parkinson's. Don't abuse  the generosity of
>the University of  Toronto's free gift of the list.  Don't include all of
>the  message  to  which  you  are   replying.  Use  plain  text  with  no
>attachments. Wash your hands with soap before you eat. :) In other words,
>use the same common courtesy that you would elsewhere.
>
>We need  everyone's voices if  we are going to  make a difference  in the
>care and  treatment of  pd and  the motivation  and funding  of research.
>Speak  up.  Tell  your  story.  Ask  your  questions.  Answer  questions.
>Debate/argue   about  the   answers.   Debate/argue   about  the   goals,
>administration, day-to-day  functioning of the  list. Tell a  joke... but
>please don't attempt to silence anyone else's voice.
>
>The  messages on  the Parkinsn  list  may be  personal but  they are  NOT
>private... never have been. The illusion  of privacy when using e-mail is
>just that: an illusion.
>
>Never,  in the  history of  this planet,  has this  kind of  relationship
>existed. We  meet in a place  that has no  walls. We talk to  our friends
>whom we have  never seen. We care  deeply for other members  whom we will
>never physically hug.  Folks, we're making it  up as we go  along, so any
>rules have  to be  flexible. Our  Parkinsn Guidelines  can be  viewed at:
>http://parkinsons-information-exchange-network-online.com/parkinsn.html
>
>If  you  wish  to  view  Parkinsn  messages online  you  may  do  so  at:
>http://parkinsons-information-exchange-network-online.com/maillist.html
>
>I hope you enjoy your  involvement with the Parkinsn Information Exchange
>Network.
>
>Barbara Patterson Owner Parkinsn John Cottingham co-owner Parkinsn
>
>Please save this message for future  reference, especially if this is the
>first time you are subscribing to an electronic mailing list. If you ever
>need to leave  the list, you will find the  necessary instructions below.
>Perhaps  more importantly,  saving a  copy of  this message  (and of  all
>future subscription notices  from other mailing lists) in  a special mail
>folder will give you instant access to the list of mailing lists that you
>are subscribed  to. This may  prove very useful the  next time you  go on
>vacation and  need to leave  the lists temporarily so  as not to  fill up
>your  mailbox while  you  are away!  You should  also  save the  "welcome
>messages" from the  list owners that you will  occasionally receive after
>subscribing to a new list.
>
>To send  a message to  all the people  currently subscribed to  the list,
>just send mail to  [log in to unmask] This is called "sending
>mail to the list," because you send mail to a single address and LISTSERV
>makes  copies  for all  the  people  who  have subscribed.  This  address
>([log in to unmask]) is  also called  the "list  address." You
>must  never try  to send  any command  to that  address, as  it would  be
>distributed to all  the people who have subscribed. All  commands must be
>sent to the "LISTSERV address," [log in to unmask] It is very
>important to understand  the difference between the  two, but fortunately
>it is  not complicated. The  LISTSERV address is  like a FAX  number that
>connects you  to a  machine, whereas  the list address  is like  a normal
>voice line connecting you to a person. If you make a mistake and dial the
>FAX number  when you  wanted to talk  to someone on  the phone,  you will
>quickly realize  that you used the  wrong number and call  again. No harm
>will have been done. If on the  other hand you accidentally make your FAX
>call  someone's  voice  line,  the  person receiving  the  call  will  be
>inconvenienced, especially if your FAX then re-dials every 5 minutes. The
>fact that  most people  will eventually  connect the  FAX machine  to the
>voice line to  allow the FAX to  go through and make the  calls stop does
>not mean  that you  should continue  to send FAXes  to the  voice number.
>People would just get mad at you.  It works pretty much the same way with
>mailing  lists, with  the difference  that  you are  calling hundreds  or
>thousands of people  at the same time, and consequently  you can expect a
>lot of people to get upset if  you consistently send commands to the list
>address.
>
>You  may leave  the list  at  any time  by sending  a "SIGNOFF  PARKINSN"
>command to [log in to unmask] You  can also tell LISTSERV how
>you want it to  confirm the receipt of messages you send  to the list. If
>you do  not trust  the system,  send a "SET  PARKINSN REPRO"  command and
>LISTSERV will send you  a copy of your own messages, so  that you can see
>that the  message was  distributed and  did not get  damaged on  the way.
>After a while  you may find that this is  getting annoying, especially if
>your mail program does not tell you  that the message is from you when it
>informs you that new  mail has arrived from PARKINSN. If  you send a "SET
>PARKINSN  ACK   NOREPRO"  command,  LISTSERV   will  mail  you   a  short
>acknowledgement  instead,  which  will  look different  in  your  mailbox
>directory. With most mail programs you will know immediately that this is
>an  acknowledgement  you  can  read  later. Finally,  you  can  turn  off
>acknowledgements completely with "SET PARKINSN NOACK NOREPRO".
>
>Following  instructions from  the list  owner, your  subscription options
>have been set to "MIME" rather than the usual LISTSERV defaults. For more
>information about  subscription options, send a  "QUERY PARKINSN" command
>to [log in to unmask]
>
>Contributions sent to this list are automatically archived. You can get a
>list  of the  available  archive  files by  sending  an "INDEX  PARKINSN"
>command to [log in to unmask] You  can then order these files
>with  a "GET  PARKINSN  LOGxxxx" command,  or  using LISTSERV's  database
>search facilities. Send  an "INFO DATABASE" command  for more information
>on the latter.
>
>This  list is  available  in digest  form.  If you  wish  to receive  the
>digested  version of  the  postings,  just issue  a  SET PARKINSN  DIGEST
>command.
>
>More  information on  LISTSERV  commands  can be  found  in the  LISTSERV
>reference  card, which  you can  retrieve  by sending  an "INFO  REFCARD"
>command to [log in to unmask]
>
janet paterson: an akinetic rigid subtype, albeit perky, parky .
pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] .
smail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 .
a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
a new voice: the wwweb site: http://www.geocities.com/janet313/ .

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