In a message dated 11/3/2009 12:00:43 A.M. Eastern Standard Time,  
[log in to unmask] writes:

There  are 8 messages totalling 599 lines in this issue.

Topics of the  day:

1. Exercise & PD
2. (no subject)
3.  Fwd: FW: Extraordinaire Instrument (3)
4. Newbie's introduction  (3)

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Date:   Sun, 1 Nov 2009 16:23:25 +0500
From:    Haroon Basheer  Shaikh <[log in to unmask]>
Subject: Re: Exercise & PD

Dr  chew ray, have had two 45 min sessions with an ehergy healer feeing
light  and face relaxed. Any experience anyone pl share
Haroon  Basheer


On 11/1/09, rayilynlee <[log in to unmask]>  wrote:
> I agree totally.
>
> Rayilyn Brown
> Director  AZNPF
> Arizona Chapter National Parkinson Foundation
>  [log in to unmask]
>
>  --------------------------------------------------
> From: "chew nee  kong" <[log in to unmask]>
> Sent: Thursday, October 29, 2009  9:59 PM
> To: <[log in to unmask]>
> Subject: Re:  Exercise & PD
>
>> Dear Ray
>>
>> Just  like other treatments of PD (e.g. medications), the benefit of
>>  exercise in PD is difficult to prove. On the other hand, there is  no
>> evidence that exercise does not help in  Parkinson's.
>>
>> For a progressive illness such as PD,  absence of improvement does not
>> necessarily mean that the  treatment (e.g. exercise) is not effective. 
The
>> very fact that the  condition has stabilized or the deterioration is  
slower
>>
>> is already suggestive of a positive benefit of  a treatment.
>>
>> Yes, the cure for PD will not arrive so  soon. You have the right
>> attitude - while you are still alive, you  make the best of whatever you
>> have in life. And all of us should  do our best to make life better for
>> others who suffer from  PD.
>>
>> All of us should remain hopeful - it doesn't hurt  to keep this hope 
alive.
>>
>> Dr  Chew
>>
>>> Date: Wed, 28 Oct 2009 23:24:21  -0700
>>> From: [log in to unmask]
>>> Subject: Re:  Exercise & PD
>>> To:  [log in to unmask]
>>>
>>>  John
>>>
>>> I think you are just being realistic, I  don't think there will be a
>>> "cure"
>>> in my  lifetime either, but we need to push for it.  It gives me  
something
>>>
>>> to
>>> do while I wait  to die.   Since I don't  know when that will be, I  
want
>>> to
>>> do all I can to help myself.   You've perhaps heard the saying "if I had
>>> known I was going to  live this long I would have taken better care of
>>>  myself".  Since I can barely walk I don't  think I will be competing  
in
>>> any
>>> sports events, but will keep on  pedaling, just because it can't hurt.
>>> DBS
>>> in  2003 has controlled my tremors.
>>>
>>>  Ray
>>>
>>> Rayilyn Brown
>>> Director  AZNPF
>>> Arizona Chapter National Parkinson  Foundation
>>> [log in to unmask]
>>>
>>>  --------------------------------------------------
>>> From: "john  thomas" <[log in to unmask]>
>>> Sent: Wednesday, October 28,  2009 12:51 PM
>>> To:  <[log in to unmask]>
>>> Subject: Re: Exercise  & PD
>>>
>>> > Personally I don't think there  will be a "cure" in my lifetime.
>>> > I have had the dbs  surgery and am "cured" of major symptoms. I need 
to
>>> >  work
>>> > o n my speech, my balance and my bike riding. In  fact I wish I could
>>> > ride
>>> > for 3-4  hours per day then I could enter the Hawaii iron man team's
>>>  > event
>>> > The simple fact is this is a disease of  unknown etiology. As a
>>> > consequence
>>> >  it gets umbrella diagnosis.
>>> > Until the origins are truly y  found which is most probably a genetic
>>> > breakdown rather  than a genetic hereditary trait, there will be no"
>>> >  cure
>>> > ".
>>> > Not to say the origins of  the disease won't be found when the human
>>> >  genome
>>> > project finally makes sense, just that the cure  may be worse the
>>> > disease.
>>> > I don't  wish to be so negative on this but when everyone begins to
>>>  > realizes
>>> > that the symptoms  relief is th   best we have at the moment  from
>>> > degenerative  process then he better weal will be roach  this   dieses
>>> > with
>>> > the focus on quality of  life rather than a simplistic notion of 
disease
>>> > therefore  cure  approach.
>>> > So I would say to you keep up the  good work and plan on the Hawaii
>>> > ironman
>>>  > event.
>>> > John Thomas
>>> > BAPS MEDICAL  RADIATION
>>> >
>>> > -----Original  Message-----
>>> > From: Parkinson's Information Exchange  Network
>>> > [mailto:[log in to unmask]] On Behalf  Of rayilynlee
>>> > Sent: Tuesday, October 27, 2009 7:04  PM
>>> > To: [log in to unmask]
>>> >  Subject: Exercise & PD
>>> >
>>> > I've  gotten my forced exercise of cycling up to 3 and 4 hours a day
>>>  > with
>>> > no
>>> > improvement in symptoms  after 3 months; however I've managed to lose
>>> >  about
>>> > 5
>>> > lbs.  This University  of Pittsburg study claims great promise for
>>> >  exercise
>>> > as PD treatment.  I'm kinda hooked on it as  I can watch TV and do it.
>>> >
>>> > What think  you Dr. Chu?
>>> >
>>> > Ray
>>>  >  
http://www.barchester.com/Healthcare-News/New-Parkinson's-breakthrough-is-%2
>>>  > 2tantalising%22/376/3062
>>> >
>>>  >
>>> >
>>> > Rayilyn Brown
>>>  > Director AZNPF
>>> > Arizona Chapter National Parkinson  Foundation
>>> > [log in to unmask]
>>>  >
>>> >  
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>>> >  
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>>
>>  _________________________________________________________________
>>  New Windows 7: Find the right PC for you. Learn more.
>>  http://windows.microsoft.com/shop
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-- 
Sent from my mobile  device

Best
Haroon  Basheer

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------------------------------

Date:   Sun, 1 Nov 2009 14:59:34 EST
From:    Jim Finn  <[log in to unmask]>
Subject: (no  subject)

commands


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------------------------------

Date:   Mon, 2 Nov 2009 00:36:34 GMT
From:    "[log in to unmask]"  <[log in to unmask]>
Subject: Fwd: FW: Extraordinaire  Instrument

Non PD. This is really amazing....A friend described it as  "your brain =
on music"
=

Turn your sound on for  this.   Read this first, then watch.  This is alm=
ost  unbelievable. See how all of the balls wind up in catcher cones.     =
=

=
=

This incredible machine was  built as a collaborative effort between the =
Robert M. Trammell Music  Conservatory and the Sharon Wick School of Engi=
neering at the University  of Iowa .. Amazingly, 97% of the machines comp=
onents came from John Deere  Industries and Irrigation Equipment of Bancr=
oft , Iowa ..Yes, farm  equipment!                   =

=
=

It took  the team a combined 13,029 hours of set-up, alignment, calibrati=
on, and  tuning before filming this video but as you can see it was WELL =
worth the  effort.                      =

=
=

It is now on display in the Matthew Gerhard Alumni Hall at the  Universit=
y and is already slated to be donated to the Smithsonian.  =


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------------------------------

Date:   Sun, 1 Nov 2009 08:44:44 -0500
From:    Jennifer Gaudio  <[log in to unmask]>
Subject: Newbie's introduction

Hello  all=2C=20

=20

My name is Jen Gaudio. I'm 38 and was just  diagnosed with YOPD on October 
1=
4th. I'm doing fairly well as I suspected  it for a while and had time to 
pr=
epare. I've been experiencing tremors=2C  muscle weakness=2C spasms and 
rigi=
dity in my left side since 2007. The  diagnosis got confused as the worst 
sy=
mptoms popped up after I had tendon  repair surgery on both my legs. It 
seem=
s tremors run in my family--seven  have them all ranges of age--but I am 
the=
first to knowingly develop into  pd. I'm working on participating in some s=
tudies. I figure if I can help  someone else down the line it may be worth 
i=
t.=20

=20

I'm  in the research and planning stages. I think that's where most of my  
fr=
eakout energy is going. I found out about this listserv from "When  
Parkinso=
n's Strikes Early" and here I am. I'm most interested in how to  maintain 
so=
me normalcy while losing independence as it progresses (I'm  single and 
like=
ly staying that way) work and ADA issues (I'm a museum  curator) and 
anythin=
g that may help slow progression and keep some level  of fitness (brfore 
the=
surgery I was a yoga and tai chi student and loved  swimming).

=20

As a newbie I'm grateful that this listserv  exists=2C thank you to all who 
=
developed and support this  resource.

=20

Best=2C

Jen
=20
_________________________________________________________________
Hotmail:  Trusted email with Microsoft's powerful SPAM  protection.
http://clk.atdmt.com/GBL/go/177141664/direct/01/
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------------------------------

Date:   Mon, 2 Nov 2009 01:17:48 -0700
From:    Sami  <[log in to unmask]>
Subject: Re: Fwd: FW: Extraordinaire  Instrument

You forgot to send the URL so we could watch  it.=0D
Sami=0D
=0D
-------Original Message-------=0D
=0D
From:  [log in to unmask]
Date: 11/2/2009 12:05:25 AM=0D
To:  [log in to unmask]
Subject: Fwd: FW: Extraordinaire  Instrument=0D
=0D
Non PD. This is really amazing....A friend  described it as "your brain =
on
music"=0D
=0D
Turn your sound on  for this.   Read this first, then watch.  This is  almo=
st
unbelievable. See how all of the balls wind up in catcher  cones.=0D
=0D
This incredible machine was built as a collaborative  effort between the
Robert M. Trammell Music Conservatory and the Sharon  Wick School of
Engineering at the University of Iowa .. Amazingly, 97% of  the machines
components came from John Deere Industries and Irrigation  Equipment of
Bancroft , Iowa ..Yes, farm equipment!=0D
=0D
It took  the team a combined 13,029 hours of set-up, alignment,  calibratio=
n,
and tuning before filming this video but as you can see  it was WELL worth
the effort.=0D
=0D
It is now on display in the  Matthew Gerhard Alumni Hall at the University
and is already slated to be  donated to the  Smithsonian.=0D
=0D
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To  sign-off Parkinsn send a message to:  mailto:[log in to unmask]
=2Eca=0D
In the body of the message  put: signoff  parkinsn=0D
=0D
____________________________________________________________=0D
=0D
=0D
No  virus found in this incoming message.=0D
Checked by AVG -  www.avg.com=0D
Version: 8.5.423 / Virus Database: 270.14.44/2475 - Release  Date:  11/01/0=
9
19:39:00=0D
=20

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------------------------------

Date:   Mon, 2 Nov 2009 10:53:21 +0200
From:    Nic Marais  <[log in to unmask]>
Subject: Re: Fwd: FW: Extraordinaire  Instrument

It's nonsense  anyway...

See:

http://www.snopes.com/photos/arts/musicmachine.asp

Nic  57/15

On Mon, Nov 2, 2009 at 10:17 AM, Sami <[log in to unmask]>  wrote:

> You forgot to send the URL so we could watch it.
>  Sami
>
> -------Original Message-------
>
> From:  [log in to unmask]
> Date: 11/2/2009 12:05:25 AM
> To:  [log in to unmask]
> Subject: Fwd: FW: Extraordinaire  Instrument
>
>  Non PD. This is really amazing....A friend  described it as "your brain 
on
> music"
>
> Turn your sound  on for this.   Read this first, then watch.  This is  
almost
> unbelievable. See how all of the balls wind up in catcher  cones.
>
> This incredible machine was built as a collaborative  effort between the
> Robert M. Trammell Music Conservatory and the  Sharon Wick School of
> Engineering at the University of Iowa ..  Amazingly, 97% of the machines
> components came from John Deere  Industries and Irrigation Equipment of
> Bancroft , Iowa ..Yes, farm  equipment!
>
> It took the team a combined 13,029 hours of set-up,  alignment, 
calibration,
> and tuning before filming this video but as  you can see it was WELL worth
> the effort.
>
> It is now on  display in the Matthew Gerhard Alumni Hall at the University
> and is  already slated to be donated to the Smithsonian.
>
>  ----------------------------------------------------------------------
>  To sign-off Parkinsn send a message to: mailto:
>  [log in to unmask]
> In the body of the message put: signoff  parkinsn
>
>  ____________________________________________________________
>
>
>  No virus found in this incoming message.
> Checked by AVG -  www.avg.com
> Version: 8.5.423 / Virus Database: 270.14.44/2475 -  Release Date: 
11/01/09
> 19:39:00
>
>
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------------------------------

Date:   Mon, 2 Nov 2009 01:10:04 -0800
From:    Haroon Basheer  Shaikh <[log in to unmask]>
Subject: Re: Newbie's  introduction

Dear Jen,
Here is what is working for me
age 62  retired banker
diagnosed age 56
What has worked for me
Slide  22
nFighting depression
nPositive thinking/take charge
nGood doctors,  professional medical assistance
nSpiritual help
nFamily and spouse  support
nDesire to help others (Formation of Society)
nUnderstanding the  condition
nMaking friends with PD, jokingly call it =91pinkypd=92
nNot  losing hope


Best
Haroon  Basheer
www.parkinsons.org.pk




On Sun, Nov 1, 2009 at  5:44 AM, Jennifer Gaudio <[log in to unmask]> wrote:

> Hello  all,
>
>
>
> My name is Jen Gaudio. I'm 38 and was  just diagnosed with YOPD on October
> 14th. I'm doing fairly well as I  suspected it for a while and had time to
> prepare. I've been  experiencing tremors, muscle weakness, spasms and
> rigidity in my left  side since 2007. The diagnosis got confused as the 
wo=
rst
> symptoms  popped up after I had tendon repair surgery on both my legs. It
> seems  tremors run in my family--seven have them all ranges of age--but I 
 =
am
> the first to knowingly develop into pd. I'm working on  participating in 
s=
ome
> studies. I figure if I can help someone  else down the line it may be 
wort=
h
>  it.
>
>
>
> I'm in the research and planning stages. I  think that's where most of my
> freakout energy is going. I found out  about this listserv from "When
> Parkinson's Strikes Early" and here I  am. I'm most interested in how to
> maintain some normalcy while losing  independence as it progresses (I'm
> single and likely staying that way)  work and ADA issues (I'm a museum
> curator) and anything that may help  slow progression and keep some level 
=
of
> fitness (brfore the  surgery I was a yoga and tai chi student and loved
>  swimming).
>
>
>
> As a newbie I'm grateful that this  listserv exists, thank you to all who
> developed and support this  resource.
>
>
>
> Best,
>
>  Jen
>
>  _________________________________________________________________
>  Hotmail: Trusted email with Microsoft's powerful SPAM protection.
>  http://clk.atdmt.com/GBL/go/177141664/direct/01/
>  http://clk.atdmt.com/GBL/go/177141664/direct/01/
>
>  ----------------------------------------------------------------------
>  To sign-off Parkinsn send a message to: mailto:
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>

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------------------------------

Date:   Mon, 2 Nov 2009 01:16:23 -0800
From:    Haroon Basheer  Shaikh <[log in to unmask]>
Subject: Re: Newbie's  introduction

my life with PD


Slide 27
*Dance as if no one  were watching,
**sing as if no one were listening,
**and live everyday  as if it were to **be your last.=94 *


Best
Haroon  Basheer




On Sun, Nov 1, 2009 at 5:44 AM, Jennifer Gaudio  <[log in to unmask]> wrote:

> Hello  all,
>
>
>
> My name is Jen Gaudio. I'm 38 and was  just diagnosed with YOPD on October
> 14th. I'm doing fairly well as I  suspected it for a while and had time to
> prepare. I've been  experiencing tremors, muscle weakness, spasms and
> rigidity in my left  side since 2007. The diagnosis got confused as the 
wo=
rst
> symptoms  popped up after I had tendon repair surgery on both my legs. It
> seems  tremors run in my family--seven have them all ranges of age--but I 
 =
am
> the first to knowingly develop into pd. I'm working on  participating in 
s=
ome
> studies. I figure if I can help someone  else down the line it may be 
wort=
h
>  it.
>
>
>
> I'm in the research and planning stages. I  think that's where most of my
> freakout energy is going. I found out  about this listserv from "When
> Parkinson's Strikes Early" and here I  am. I'm most interested in how to
> maintain some normalcy while losing  independence as it progresses (I'm
> single and likely staying that way)  work and ADA issues (I'm a museum
> curator) and anything that may help  slow progression and keep some level 
=
of
> fitness (brfore the  surgery I was a yoga and tai chi student and loved
>  swimming).
>
>
>
> As a newbie I'm grateful that this  listserv exists, thank you to all who
> developed and support this  resource.
>
>
>
> Best,
>
>  Jen
>
>  _________________________________________________________________
>  Hotmail: Trusted email with Microsoft's powerful SPAM protection.
>  http://clk.atdmt.com/GBL/go/177141664/direct/01/
>  http://clk.atdmt.com/GBL/go/177141664/direct/01/
>
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End of PARKINSN  Digest - 1 Nov 2009 to 2 Nov 2009  (#2009-375)
*************************************************************



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